==========================================================================================
Section DD: ASSESSMENT DATA PART II: DEMENTIA DIAGNOSES/SUMMARY SCORES - FOLLOW-UP VISIT (Respondent)
==========================================================================================
HHID HRS HOUSEHOLD IDENTIFIER
Section: DD Level: Respondent Type: Character Width: 6 Decimals: 0
This variable uniquely identifies an original household across waves of HRS.
.................................................................................
217 010059-213467. Household Identification Number
==========================================================================================
PN HRS PERSON NUMBER IDENTIFIER
Section: DD Level: Respondent Type: Character Width: 3 Decimals: 0
Each respondent has a Person Number. The identifier is unique within an original
household across waves of HRS.
.................................................................................
131 010. Person Number
4 011. Person Number
55 020. Person Number
021. Person Number
16 030. Person Number
11 040. Person Number
041. Person Number
==========================================================================================
ADAMSSID ADAMS SUBJECT IDENTIFIER
Section: DD Level: Respondent Type: Character Width: 5 Decimals: 0
This variable uniquely identifies an ADAMS subject in the ADAMS data files.
.................................................................................
217 00111-21271. ADAMS Subject Identification Number
==========================================================================================
DDCCDX1 WAVE D PRIMARY DX (NO MED RECS)
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
.................................................................................
5 1. Probable AD
5 2. Possible AD
1 3. Probable Vascular Dementia
4 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
4 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
19 20. Mild-ambiguous
8 21. Cognitive impairment secondary to vascular disease
1 22. Mild Cognitive Impairment
6 23. Depression
1 24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
4 28. Stroke
4 29. Other Neurological conditions
9 30. Other Medical conditions
118 31. Normal/Non-case
1 32. Possible Lewy Body dementia
26 33. CIND, non-specified
==========================================================================================
DDCCDX2 WAVE D SECONDARY DX (NO MED RECS)
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a secondary diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
1 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
4 23. Depression
2 24. Psychiatric Disorder
3 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
2 28. Stroke
1 29. Other Neurological conditions
7 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
194 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
DDCCDX3 WAVE D TERTIARY DX (NO MED RECS)
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a tertiary diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
1 24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
215 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
DDCCMDX1 WAVE D PRIMARY DX (W/ MED RECS)
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable.
.................................................................................
1. Probable AD
2 2. Possible AD
2 3. Probable Vascular Dementia
2 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
2 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
6 20. Mild-ambiguous
7 21. Cognitive impairment secondary to vascular disease
1 22. Mild Cognitive Impairment
2 23. Depression
24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
3 28. Stroke
2 29. Other Neurological conditions
4 30. Other Medical conditions
12 31. Normal/Non-case
32. Possible Lewy Body dementia
4 33. CIND, non-specified
167 97. No diagnosis assigned based on med record review
==========================================================================================
DDCCMDX2 WAVE D SECONDARY DX (W/ MED RECS)
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a secondary
diagnosis.
.................................................................................
1. Probable AD
1 2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
4 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
3 23. Depression
24. Psychiatric Disorder
2 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
1 28. Stroke
29. Other Neurological conditions
30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
167 97. No diagnosis assigned based on med record review
39 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
DDCCMDX3 WAVE D TERTIARY DX (W/ MED RECS)
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a tertiary
diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
167 97. No diagnosis assigned based on med record review
48 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
DDFDX1 WAVE D FINAL PRIMARY DIAGNOSIS
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CDCCFDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the 'final' primary research diagnosis following the Wave
C assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
5 1. Probable AD
6 2. Possible AD
2 3. Probable Vascular Dementia
3 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
3 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
19 20. Mild-ambiguous
9 21. Cognitive impairment secondary to vascular disease
1 22. Mild Cognitive Impairment
6 23. Depression
1 24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
4 28. Stroke
4 29. Other Neurological conditions
9 30. Other Medical conditions
117 31. Normal/Non-case
1 32. Possible Lewy Body dementia
26 33. CIND, non-specified
==========================================================================================
DDFDX2 WAVE D FINAL SECONDARY DIAGNOSIS
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CDCCFDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the 'final' secondary research diagnosis following the
Wave C assessment. Not all subjects were assigned a secondary diagnosis. This
research diagnosis takes the medical record review (if applicable) into account.
.................................................................................
1. Probable AD
1 2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
4 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
4 23. Depression
1 24. Psychiatric Disorder
3 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
1 28. Stroke
1 29. Other Neurological conditions
5 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
194 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
DDFDX3 WAVE D FINAL TERTIARY DIAGNOSIS
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CDCCFDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the 'final' tertiary research diagnosis following the
Wave C assessment. Not all subjects were assigned a tertiary diagnosis. This
research diagnosis takes the medical record review (if applicable) into account.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
1 24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
214 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
DDONSET AGE OF ONSET FOR SUBJECT WITH DEMENTIA
Section: DD Level: Respondent Type: Numeric Width: 3 Decimals: 0
Ref: CDONSET
This variable is the age of onset for dementia and was assigned if a subject was
assigned a diagnosis of dementia based on the based on the Wave C assessment.
Onset is the age at which we estimate that the individual met DSM criteria for
dementia based on review of the chronological history of cognitive and
functional symptoms. This information is based primarily on informant report.
.................................................................................
2 70-79. Age of onset of dementia
14 80-89. Age of onset of dementia
3 90-99. Age of onset of dementia
1 100-109. Age of onset of dementia
197 Blank. Inapplicable or no age of onset assigned
==========================================================================================
DDCDRCP WHETHER CDR SCALE COMPLETED
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: INITIAL ASSESSMENT DATA
Measure: CDR - CLINICAL DEMENTIA RATING
Whether the CDR Scale was completed.
The CDR quantifies severity of dementia in several different areas of
functioning. The CDR reflects an indirect evaluation of cognition and
functional performance based on information obtained from both the informant and
subject during the course of the evaluation. The CDR rating was assigned for
all subjects, regardless of dementia status. More information about the CDR and
how scores were assigned can be found in the data description.
.................................................................................
217 1. Yes
5. No
==========================================================================================
DDCDRS1 CDR ITEM 1 SCORE, MEMORY
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
77 0. No Dementia
118 0.5. Mild Impairment
21 1. Mild Dementia
1 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDCDRS2 CDR ITEM 2 SCORE, ORIENTATION
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
161 0. No Dementia
42 0.5. Mild Impairment
11 1. Mild Dementia
2 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDCDRS3 CDR ITEM 3 SCORE, JUDGEMENT
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
120 0. No Dementia
76 0.5. Mild Impairment
19 1. Mild Dementia
2 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDCDRS4 CDR ITEM 4 SCORE, COMM AFFAIRS
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
182 0. No Dementia
25 0.5. Mild Impairment
9 1. Mild Dementia
1 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDCDRS5 CDR ITEM 5 SCORE, HOME/HOBBY
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
183 0. No Dementia
23 0.5. Mild Impairment
9 1. Mild Dementia
1 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDCDRS6 CDR ITEM 6 SCORE, PERSONAL CARE
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
209 0. No Dementia
7 1. Mild Dementia
1 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDCDRSTG CDR - CALCULATED OVERALL SCORE
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
76 0. No Dementia
131 0.5. Mild Impairment
9 1. Mild Dementia
1 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
Blank. Not assessed/Not asked
==========================================================================================
DDHACHCP HACHINSKI SCALE COMPLETED
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Whether the Hachinski Scale was completed.
The Modified Hachinski Scale is designed to assess a number of risk factors for
vascular dementia. This form was only completed if a diagnosis of dementia was
assigned to a subject. More information about this scale and how scores were
assigned can be found in the data description.
.................................................................................
20 1. Yes
197 5. No
==========================================================================================
DDHACH1 HACHINSKI ITEM 1, ABRUPT DEMENTIA ONSET
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: INITIAL ASSESSMENT DATA
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
1. Abrupt onset
.................................................................................
17 0. Absent
3 2. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH2 HACHINSKI ITEM 2, STEPWISE DETERIORATION
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
2. Stepwise deterioration
.................................................................................
18 0. Absent
2 1. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH3 HACHINSKI ITEM 3, SOMATIC COMPLAINTS
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
3. Somatic complaints
.................................................................................
19 0. Absent
1 1. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH4 HACHINSKI ITEM 4, EMOTIONAL INCONTINENCE
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
4. Emotional incontinence
.................................................................................
19 0. Absent
1 1. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH5 HACHINSKI ITEM 5, HYPERTENSION HISTORY
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
5. History of hypertension
.................................................................................
2 0. Absent
18 1. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH6 HACHINSKI ITEM 6, STROKE/TIA HISTORY
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
6. History of stroke or TIA
.................................................................................
14 0. Absent
6 2. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH7 HACHINSKI ITEM 7, FOCAL NEUROL SYMPTOMS
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
7. Focal neurological symptoms
.................................................................................
15 0. Absent
5 2. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACH8 HACHINSKI ITEM 8, FOCAL NEUROL SIGNS
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
8. Focal neurological signs
.................................................................................
16 0. Absent
4 2. Present
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDHACHSC HACHINSKI - CALCULATED SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
.................................................................................
20 0-12. Total score
197 Blank. Not assessed/Not asked DDHACHCP = 5
==========================================================================================
DDDRSCP DSRS - WHETHER COMPLETED
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was completed
The DSRS is an informant-completed multiple-choice questionnaire that assesses
severity of cognitive and functional impairment in domains that are typically
affected by Alzheimer's disease (AD). There are 12 items assessing the
following domains: memory, orientation, judgment, social interactions/ community
affairs, home activities/responsibilities, personal care, speech/language,
recognition of others, feeding, incontinence, mobility/walking, and
informant-perceived stress. More information about this scale and how scores
were assigned can be found in the data description.
.................................................................................
211 1. Yes
6 5. No
==========================================================================================
DDDRSSPN DSRS - DONE IN SPANISH
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was conducted in Spanish.
.................................................................................
3 1. Yes
214 Blank. No
==========================================================================================
DDINFGEN DSRS GENDER OF INFORMANT
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
47 1. Male
164 2. Female
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSREL DSRS INFORMANT RELATIONSHIP TO SUBJECT
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
81 1. Spouse
69 2. Child
10 3. Sibling
4. Parent
23 5. Friend
6. Guardian
4 7. Neighbor
24 8. Other
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSRLS DSRS SPECIFY IF DDDRSREL=OTHER
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
4 1. Caregiver
20 2. Other relative (e.g., cousin, cousin-in-law,
daughter-in-law, foster sister, granddaughter, grandniece,
nephew, niece, sister-in-law)
193 Blank. Not assessed/Not asked
==========================================================================================
DDDRSN1 DSRS MEMORY SCORE
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: NEWDSRS1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
Please note that the DSRS in Waves C and D differs from the version of the DSRS
used in Waves A and B.
.................................................................................
99 0. Normal
75 1. Occasionally forgets things that they were told recently.
Does not cause many problems.
19 2. Mild consistent forgetfulness. Remembers recent events but
often forgets parts.
11 3. Moderate memory loss. Worse for recent events. May not
remember something you just told them. Causes problems with
everyday activities.
4 4. Substantial memory loss. Quickly forgets recent or
newly-learned things. Can only remember things that they
have known for a long time.
2 5. Does not remember basic facts like the day of the week,
when last meal was eaten, or what the next meal will be.
1 6. Does not remember even the most basic things.
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN2 DSRS SPEECH AND LANGUAGE SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
147 0. Normal ability to talk and to understand others.
50 1. Sometimes cannot find a word but able to carry on
conversations.
9 2. Often forgets words. May use the wrong word in its place.
Some trouble expressing thoughts and giving answers.
1 3. Usually answers questions using sentences but rarely starts
a conversation.
3 4. Answers questions, but responses are often hard to
understand or don't make sense. Usually able to follow
simple instructions.
1 5. Speech often does not make sense. Cannot answer questions or
follow instructions.
6. Does not respond most of the time.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN3 DSRS RECOGNITION OF FAMILY MEMBERS SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
192 0. Normal. Recognizes people and generally knows who they are.
12 1. Usually recognizes grandchildren, cousins, or relatives
who are not seen frequently but may not recall how they are
related.
3 2. Usually does not recognize family members who are not seen
frequently. Is often confused about how family members such
as grandchildren, nieces, or nephews are related to them.
3 3. Sometimes does not recognize close family members or others
who they see frequently. May not recognize their children,
brothers, or sisters who are not seen on a regular basis.
1 4. Frequently does not recognize spouse or caregiver.
5. No recognition or awareness of the presence of others.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN4 DSRS ORIENTATION TO TIME SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS4
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
172 0. Normal awareness of time of day and day of week.
35 1. Some confusion about what time it is or what day of the week
but not severe enough to interfere with everyday activities.
1 2. Frequently confused about time of day.
1 3. Almost always confused about the time of day.
2 4. Seems completely unaware of time.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN5 DSRS ORIENTATION TO PLACE SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS5
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
174 0. Normal awareness of where they are even in new places.
29 1. Sometimes disoriented in new places.
4 2. Frequently disoriented in new places.
2 3. Usually disoriented, even in familiar places. May forget
that they are already at home.
2 4. Almost always confused about place.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN6 DSRS ABILITY TO MAKE DECISIONS SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS6
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
158 0. Normal. As able to make decisions as before.
29 1. Only some difficulty making decisions that arise in
day-to-day life.
16 2. Moderate difficulty. Gets confused when things get
complicated or plans change.
6 3. Rarely makes any important decisions. Gets confused easily.
2 4. Not able to understand what is happening most of the time.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN7 DSRS SOCIAL AND COMMUNITY ACTIVITY SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS7
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
177 0. Normal. Acts the same with people as before
21 1. Only mild problems that are not really important but clearly
acts differently from previous years.
7 2. Can still take part in community activities without help.
May appear normal to people who don't know them.
5 3. Often has trouble dealing with people outside the home
without help from caregiver. Usually can participate in
quiet home activities with friends. The problem is clear to
anyone who sees them.
4. No longer takes part in any real way in activities at home
involving other people. Can only deal with the primary
caregiver.
1 5. Little or no response even to primary caregiver.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN8 DSRS HOME ACTIVITIES, RESPONSIBILITIES SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS8
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
152 0. Normal. No decline in ability to do things around the house.
44 1. Some problems with home activities. May have more trouble
with money management (paying bills) and fixing things. Can
still go to a store, cook, or clean. Still watches TV or
reads a newspaper with interest and understanding.
3 2. Makes mistakes with easy tasks like going to a store,
cooking, or cleaning. Losing interest in the newspaper, TV
or radio. Often can't follow a long conversation on a single
topic.
5 3. Not able to shop, cook, or clean without a lot of help.
Does not understand the newspaper or the TV. Cannot follow a
conversation.
7 4. No longer does any home-based activities.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN9 DSRS PERSONAL CARE SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS9
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
186 0. Normal. Takes care of self as well as they used to.
9 1. Sometimes forgets to wash, shave, comb hair, or may dress
in wrong type of clothes. Not as neat as they used to be.
9 2. Requires help with dressing, washing, and personal
grooming.
7 3. Totally dependent on help for personal care.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN10 DSRS EATING SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS10
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
195 0. Normal. Does not need help in eating food that is served to
them.
13 1. May need help cutting food or have trouble with some foods
but basically able to eat by themselves.
2. Generally able to feed themselves but may require some help.
May lose interest during the meal.
3 3. Needs to be fed. May have trouble swallowing.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN11 DSRS INCONTINENCE, BOWEL CONTROL SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS11
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
184 0. Normal. Does not have problems controlling urination or
bowels except for physical problems.
8 1. Rarely fails to control urination (generally less than one
accident per month).
6 2. Occasional failure to control urination (about once a week
or less).
8 3. Frequently fails to control urination (more than once a
week).
5 4. Generally fails to control urination and frequently can not
control bowels.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSN12 DSRS MOBIILTY SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS12
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
192 0. Normal. Able to get around on their own. (May have physical
problems that require a cane or walker).
6 1. Sometimes gets confused when driving or taking public
transportation, especially in new places. Able to walk
places alone.
7 2. Cannot drive or take public transportation alone, even in
familiar places. Can walk alone outside for short distances.
Might get lost if walking too far from home.
1 3. Cannot be left outside alone. Can get around the house
without getting lost or confused.
4. Gets confused and needs help finding their way around the
house.
2 5. Almost always in a bed or chair. May be able to walk a few
steps with help, but lacks sense of direction.
3 6. Always in bed. Unable to sit or stand.
98. DK (Don't Know)
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDDRSSCR DSRS SCORE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRSSCR
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Please note that the DSRS in Waves C and D differs from the version of the DSRS
used in Waves A and B.
.................................................................................
211 0-50. DSRS SCORE
6 Blank. Not assessed/Not asked DDDRSCP =5
==========================================================================================
DDBLCP BLESSED DEMENTIA RATING SCALE COMPLETED
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
The Blessed Dementia Rating Scale - CERAD is a standardized research instrument
that characterizes performance of activities of daily living that are often
affected by dementia. The informant was instructed to rate whether the subject
had no loss, some loss or severe loss of ability in a number of areas of
cognition and everyday activities. For three items assessing activities of
daily living (i.e., eating, dressing, toileting), the informant reported the
level of assistance the subject needed on a three-point scale. For all items,
the informant also noted whether the loss of ability or the need for assistance
in each area was due to Mental (i.e. cognitive) and/or Physical reasons. The
score is weighted based on the severity of the loss. The only items counted in
the score are losses for which the cause is 'Mental' or 'Both' (Mental and
Physical). More information about this scale and how scores were assigned can
be found in the data description.
.................................................................................
211 1. Yes
6 5. No
==========================================================================================
DDBL1A BLESSED SCORE-PERFORM HOUSEHOLD TASKS
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Perform household tasks
.................................................................................
144 0. None
43 0.5. Some
24 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1AR REASON FOR BLESSED SCORE - DDBL1A
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
53 0. Physical
5 1. Mental
9 2. Both physical and mental
150 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1B BLESSED SCORE-COPE WITH SMALL SUMS MONEY
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Cope with small sums of money
.................................................................................
205 0. None
4 0.5. Some
2 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1BR BLESSED REASON FOR SCORE - DDBL1B
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
2 0. Physical
4 1. Mental
2. Both physical and mental
211 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1C BLESSED SCORE-REMEMBER SHORT LIST ITEMS
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Remember a short list of items (e.g., shopping list)
.................................................................................
162 0. None
38 0.5. Some
11 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1CR REASON FOR BLESSED SCORE - DDBL1C
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
49 1. Mental
2. Both physical and mental
168 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1D BLESSED SCORE-FIND WAY ABOUT INDOORS
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way about indoors (home or other familiar locations)
.................................................................................
203 0. None
5 0.5. Some
3 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1DR REASON FOR BLESSED SCORE - DDBL1D
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
1 0. Physical
6 1. Mental
1 2. Both physical and mental
209 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1E BLESSED SCORE-FIND WAY FAMILIAR STREETS
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way around familiar streets
.................................................................................
188 0. None
15 0.5. Some
8 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1ER REASON FOR BLESSED SCORE - DDBL1E
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
6 0. Physical
14 1. Mental
3 2. Both physical and mental
194 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1F BLESSED SCORE-GRASP SITUATIONS
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Grasp situations or explanations
.................................................................................
195 0. None
15 0.5. Some
1 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1FR REASON FOR BLESSED SCORE - DDBL1F
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
16 1. Mental
2. Both physical and mental
201 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1G BLESSED SCORE-RECALL RECENT EVENTS
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Recall recent events
.................................................................................
106 0. None
96 0.5. Some
9 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1GR REASON FOR BLESSED SCORE - DDBL1G
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
105 1. Mental
2. Both physical and mental
112 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1H BLESSED SCORE-DWELL IN THE PAST
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Tendency to dwell in the past
.................................................................................
177 0. None
21 0.5. Some
13 1. Severe
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL1HR REASON FOR BLESSED SCORE - DDBL1H
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
34 1. Mental
2. Both physical and mental
183 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL2EA BLESSED SCORE - EATING
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
204 0. Feeds self without assistance
6 1. Feeds self with minor assistance
2. Feeds self with much assistance
1 3. Has to be fed
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL2EAR REASON FOR BLESSED SCORE - DDBL2EA
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
6 0. Physical
1. Mental
1 2. Both physical and mental
210 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL2DRE BLESSED SCORE - DRESSING
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
176 0. Unaided
24 1. Occasionally misplaces buttons, etc., requires minor help
5 2. Wrong sequences, forgets items, requires much assistance
6 3. Unable to dress
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL2DRR REASON FOR BLESSED SCORE - DDBL2DRE
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
31 0. Physical
2 1. Mental
2 2. Both physical and mental
182 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL2TO BLESSED SCORE - TOILET
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
165 0. Clean, cares for self at toilet
23 1. Occasional incontinence, or needs to be reminded
16 2. Frequent incontinence, or needs much assistance
7 3. Little or no control
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL2TOR REASON FOR BLESSED SCORE - DDBL2TO
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
42 0. Physical
1 1. Mental
3 2. Both physical and mental
171 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBLSCOR BLESSED SCALE SCORE
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
211 0-17. Total score of all Blessed dementia items
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBLPG2S BLESSED PAGE 2 OF SCALE NOT APPROPRIATE
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Page 2 of the Blessed Dementia Scale was completed only if the respondent had
advanced dementia. The nurse determined whether to administer this section
based on his/her clinical judgment whether these behaviors were relevant for a
respondent given his/her level of impairment. This variable is a checkpoint
for whether Page 2 was skipped (inapplicable) or not.
.................................................................................
210 1. Page 2 of Blessed not completed
1 5. Page 2 of Blessed completed
6 Blank. Not assessed/Not asked DDBLCP = 5
==========================================================================================
DDBL31 BLESSED SCORE-LOSS RECOGNITION CAREGIVER
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Loss of recognition of immediate caregiver
.................................................................................
0. None/Normal
1. Occasional
2. Frequent
1 3. Consistent
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL32 BLESSED SCORE-IMPAIRED AMBULATION
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Impaired ambulation (for non-physical reasons)
.................................................................................
1 0. None/Normal
1. Occasional
2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL33 BLESSED SCORE-WANDERING
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Wandering
.................................................................................
1 0. None/Normal
1. Occasional
2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL34 BLESSED SCORE-LOSS OF AWARE/COMPR/COMM
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Overall loss of awareness, comprehension, or communication (underscore which)
.................................................................................
0. None/Normal
1. Occasional
2. Frequent
1 3. Consistent
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL35 BLESSED SCORE-SERIOUS BEHAVIORAL PX
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Serious behavioral problem (noisy, angry, combative, etc.)
.................................................................................
0. None/Normal
1. Occasional
2. Frequent
1 3. Consistent
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL36 BLESSED SCORE-INABILITY FIND WAY IN HOME
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to find way in own home
.................................................................................
0. No
1 1. Yes
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL37 BLESSED SCORE-INABILITY TO USE TELEPHONE
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to telephone (at least one number)
.................................................................................
0. No
1 1. Yes
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL38 BLESSED SCORE-MONITOR WHAT/HOW EAT FOOD
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Need for monitoring what and how food is eaten (e.g., to prevent eating spoiled
foods, choking on bulky foods)
.................................................................................
1 0. No
1. Yes
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL39 BLESSED SCORE-SLEEP DISTURBANCES
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Sleep disturbances that keep caregiver awake
.................................................................................
1 0. No
1. Yes
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL310 BLESSED SCORE-LEFT ALONE ALL DAY/NIGHT
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
If necessary, could patient be left alone for entire day and night?
.................................................................................
1 0. No
1. Yes
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL311 BLESSED SCORE-LEFT ALONE AT NIGHT
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Could he or she usually be left alone at night?
.................................................................................
1 0. No
1. Yes
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDBL312 BLESSED SCORE-HOW LONG LEFT ALONE IN DAY
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For how long could subjects be left alone during day?
.................................................................................
1 0. Not at all
1. Less than 2 hours (permitting caregiver to run errands)
2. 2-8 hours (permitting caregiver to hold job)
3. More than 8 hours
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked (DDBLCP = 5 or DDBLPG2S = 1)
==========================================================================================
DDMHCP MEDICAL HISTORY COMPLETED
Section: DD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: MEDICAL HISTORY
.................................................................................
216 1. Yes
1 5. No
==========================================================================================
DDMH1 EVER SEEN DOCTOR FOR MEMORY PROBLEMS
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
The next few questions are about (SUBJECT NAME's) medical history. First, has
(SUBJECT NAME) ever seen a doctor for any of the memory problems we have
discussed? (If no memory problems endorsed, ask if subject has seen a doctor
for any concerns with her/his memory or thinking).
If answer is 'No,' 'Don't Know,' or 'Refused,' then skip the remainder of the
following medical history questions pertaining to memory problem evaluation.
.................................................................................
7 1. Yes
206 5. No (Skip Medical History Items 3-10)
3 98. DK (Don't Know) (Skip Medical History Items 3-10)
99. RF (Refused) (Skip Medical History Items 3-10)
1 Blank. Not assessed/Not asked DDMHCP = 5
==========================================================================================
DDMH3 SPECIALTY OF DOCTOR FOR DDMH1
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1 1. Neurologist
2. Psychiatrist
4 3. Family Practitioner/Internal Med
4. Geriatrician
1 7. Other (Specify)
1 98. DK (Don't Know)
99. RF (Refused)
210 Blank. Not assessed/Not asked
==========================================================================================
DDMH4MO MONTH OF EXAM FOR DDMH1
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1 1. January
2. February
3. March
4. April
5. May
6. June
7. July
1 8. August
9. September
10. October
1 11. November
12. December
4 98. DK (Don't Know)
210 Blank. Not assessed/Not asked DDMHCP = 5
==========================================================================================
DDMH4YR YEAR OF EXAM FOR DDMH1
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1 2005. Year
2006. Year
1 2007. Year
4 2008. Year
1 9998. DK (Don't Know)
210 Blank. Not assessed/Not asked
==========================================================================================
DDMH5 CAUSE OF MEMORY PROBLEM AS PER DOCTOR
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What did the doctor say was the cause of the memory trouble?
.................................................................................
1 1. Normal Aging
2. AD
2 3. VaD, Strokes or TIAS
3 4. Dementia
5. Parkinson's Disease
6. Depression
1 7. Other (Specify)
98. DK (Don't Know)
99. RF (Refused)
210 Blank. Not assessed/Not asked
==========================================================================================
DDMH6 SEE OTHER SPECIALIST FOR MEMORY PROBLEMS
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
Did (SUBJECT NAME) ever have an examination with a specialist such as a
neurologist or psychiatrist for memory problems?
This question was asked if the doctor asked about in DDMH1 is not a specialist.
.................................................................................
1 1. Yes
4 5. No (Skip Medical History Items 7-9)
1 98. DK (Don't Know)
99. RF (Refused)
211 Blank. Not assessed/Not asked
==========================================================================================
DDMH8 SPECIALTY OF DOCTOR IN DDMH6
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1. Neurologist
2. Psychiatrist
4. Geriatrician
1 7. Other (Specify)
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked
==========================================================================================
DDMH8MO MONTH OF SPECIALTY EXAM
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1. January
2. February
3. March
4. April
5. May
6. June
7. July
8. August
9. September
10. October
11. November
12. December
1 98. DK (Don't Know)
216 Blank. Not assessed/Not asked
==========================================================================================
DDMH8YR YEAR OF SPECIALTY EXAM
Section: DD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
2005. Year
1 2006. Year
2007. Year
9998. DK (Don't Know)
216 Blank. Not assessed/Not asked
==========================================================================================
DDMH9 CAUSE OF MEMORY PROB. AS PER SPECIALIST
Section: DD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What diagnosis was given for the cause of the problems?
.................................................................................
1. Normal Aging
2. AD
3. VaD, Strokes or TIAS
1 4. Dementia
5. Parkinson's Disease
6. Depression
7. Other (Specify)
98. DK (Don't Know)
99. RF (Refused)
216 Blank. Not assessed/Not asked
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