==========================================================================================
Section CD: ASSESSMENT DATA PART II: DEMENTIA DIAGNOSES/SUMMARY SCORES - FOLLOW-UP VISIT (Respondent)
==========================================================================================
HHID HRS HOUSEHOLD IDENTIFIER
Section: CD Level: Respondent Type: Character Width: 6 Decimals: 0
This variable uniquely identifies an original household across waves of HRS.
.................................................................................
315 010059-213467. Household Identification Number
==========================================================================================
PN HRS PERSON NUMBER IDENTIFIER
Section: CD Level: Respondent Type: Character Width: 3 Decimals: 0
Each respondent has a Person Number. The identifier is unique within an original
household across waves of HRS.
.................................................................................
195 010. Person Number
6 011. Person Number
78 020. Person Number
021. Person Number
17 030. Person Number
18 040. Person Number
1 041. Person Number
==========================================================================================
ADAMSSID ADAMS SUBJECT IDENTIFIER
Section: CD Level: Respondent Type: Character Width: 5 Decimals: 0
This variable uniquely identifies an ADAMS subject in the ADAMS data files.
.................................................................................
315 00021-21271. ADAMS Subject Identification Number
==========================================================================================
CDCCDX1 WAVE C PRIMARY DX (NO MED RECS)
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
.................................................................................
7 1. Probable AD
24 2. Possible AD
1 3. Probable Vascular Dementia
5 4. Possible Vascular Dementia
3 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
7 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
24 20. Mild-ambiguous
13 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
6 24. Psychiatric Disorder
3 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
11 28. Stroke
4 29. Other Neurological conditions
18 30. Other Medical conditions
158 31. Normal/Non-case
32. Possible Lewy Body dementia
23 33. CIND, non-specified
==========================================================================================
CDCCDX2 WAVE C SECONDARY DX (NO MED RECS)
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a secondary diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
1 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
9 23. Depression
24. Psychiatric Disorder
2 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
4 27. Alcohol Abuse (current)
5 28. Stroke
2 29. Other Neurological conditions
6 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
1 33. CIND, non-specified
285 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
CDCCDX3 WAVE C TERTIARY DX (NO MED RECS)
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a tertiary diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
1 29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
312 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
CDCCMDX1 WAVE C PRIMARY DX (W/ MED RECS)
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable.
.................................................................................
6 1. Probable AD
10 2. Possible AD
4 3. Probable Vascular Dementia
2 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
1 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
6 20. Mild-ambiguous
7 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
1 24. Psychiatric Disorder
3 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
9 28. Stroke
2 29. Other Neurological conditions
2 30. Other Medical conditions
19 31. Normal/Non-case
32. Possible Lewy Body dementia
5 33. CIND, non-specified
236 97. No diagnosis assigned based on med record review
==========================================================================================
CDCCMDX2 WAVE C SECONDARY DX (W/ MED RECS)
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a secondary
diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
1 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
2 23. Depression
24. Psychiatric Disorder
1 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
2 27. Alcohol Abuse (current)
4 28. Stroke
1 29. Other Neurological conditions
2 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
1 33. CIND, non-specified
236 97. No diagnosis assigned based on med record review
65 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
CDCCMDX3 WAVE C TERTIARY DX (W/ MED RECS)
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a tertiary
diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
1 29. Other Neurological conditions
30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
236 97. No diagnosis assigned based on med record review
77 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
CDFDX1 WAVE C FINAL PRIMARY DIAGNOSIS
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CDCCFDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the 'final' primary research diagnosis following the Wave
C assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
12 1. Probable AD
20 2. Possible AD
5 3. Probable Vascular Dementia
2 4. Possible Vascular Dementia
3 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
5 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
24 20. Mild-ambiguous
13 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
6 24. Psychiatric Disorder
3 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
11 28. Stroke
4 29. Other Neurological conditions
18 30. Other Medical conditions
158 31. Normal/Non-case
32. Possible Lewy Body dementia
23 33. CIND, non-specified
==========================================================================================
CDFDX2 WAVE C FINAL SECONDARY DIAGNOSIS
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CDCCFDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the 'final' secondary research diagnosis following the
Wave C assessment. Not all subjects were assigned a secondary diagnosis. This
research diagnosis takes the medical record review (if applicable) into account.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
1 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
9 23. Depression
24. Psychiatric Disorder
2 25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
4 27. Alcohol Abuse (current)
5 28. Stroke
2 29. Other Neurological conditions
6 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
1 33. CIND, non-specified
285 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
CDFDX3 WAVE C FINAL TERTIARY DIAGNOSIS
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CDCCFDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the 'final' tertiary research diagnosis following the
Wave C assessment. Not all subjects were assigned a tertiary diagnosis. This
research diagnosis takes the medical record review (if applicable) into account.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
1 23. Depression
24. Psychiatric Disorder
25. Mental Retardation/Low Premorbid Intellect
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
1 29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
312 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
CDONSET AGE OF ONSET FOR SUBJECT WITH DEMENTIA
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
This variable is the age of onset for dementia and was assigned if a subject was
assigned a diagnosis of dementia based on the based on the Wave C assessment.
Onset is the age at which we estimate that the individual met DSM criteria for
dementia based on review of the chronological history of cognitive and
functional symptoms. This information is based primarily on informant report.
.................................................................................
14 70-79. Age of onset of dementia
19 80-89. Age of onset of dementia
14 90-99. Age of onset of dementia
268 Blank. Inapplicable or no age of onset assigned
==========================================================================================
CDCDRCP WHETHER CDR SCALE COMPLETED
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: INITIAL ASSESSMENT DATA
Measure: CDR - CLINICAL DEMENTIA RATING
Whether the CDR Scale was completed.
The CDR quantifies severity of dementia in several different areas of
functioning. The CDR reflects an indirect evaluation of cognition and
functional performance based on information obtained from both the informant and
subject during the course of the evaluation. The CDR rating was assigned for
all subjects, regardless of dementia status. More information about the CDR and
how scores were assigned can be found in the data description.
.................................................................................
312 1. Yes
3 5. No
==========================================================================================
CDCDRS1 CDR ITEM 1 SCORE, MEMORY
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
100 0. No Dementia
169 0.5. Mild Impairment
38 1. Mild Dementia
5 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDCDRS2 CDR ITEM 2 SCORE, ORIENTATION
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
196 0. No Dementia
79 0.5. Mild Impairment
30 1. Mild Dementia
6 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDCDRS3 CDR ITEM 3 SCORE, JUDGEMENT
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
163 0. No Dementia
104 0.5. Mild Impairment
36 1. Mild Dementia
7 2. Moderate Dementia
2 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDCDRS4 CDR ITEM 4 SCORE, COMM AFFAIRS
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
237 0. No Dementia
49 0.5. Mild Impairment
19 1. Mild Dementia
6 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDCDRS5 CDR ITEM 5 SCORE, HOME/HOBBY
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
236 0. No Dementia
48 0.5. Mild Impairment
19 1. Mild Dementia
7 2. Moderate Dementia
2 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDCDRS6 CDR ITEM 6 SCORE, PERSONAL CARE
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
291 0. No Dementia
17 1. Mild Dementia
3 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDCDRSTG CDR - CALCULATED OVERALL SCORE
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
100 0. No Dementia
184 0.5. Mild Impairment
20 1. Mild Dementia
6 2. Moderate Dementia
2 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
3 Blank. Not assessed/Not asked
==========================================================================================
CDHACHCP HACHINSKI SCALE COMPLETED
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Whether the Hachinski Scale was completed.
The Modified Hachinski Scale is designed to assess a number of risk factors for
vascular dementia. This form was only completed if a diagnosis of dementia was
assigned to a subject. More information about this scale and how scores were
assigned can be found in the data description.
.................................................................................
47 1. Yes
268 5. No
==========================================================================================
CDHACH1 HACHINSKI ITEM 1, ABRUPT DEMENTIA ONSET
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: INITIAL ASSESSMENT DATA
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
1. Abrupt onset
.................................................................................
42 0. Absent
5 2. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH2 HACHINSKI ITEM 2, STEPWISE DETERIORATION
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
2. Stepwise deterioration
.................................................................................
42 0. Absent
5 1. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH3 HACHINSKI ITEM 3, SOMATIC COMPLAINTS
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
3. Somatic complaints
.................................................................................
46 0. Absent
1 1. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH4 HACHINSKI ITEM 4, EMOTIONAL INCONTINENCE
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
4. Emotional incontinence
.................................................................................
45 0. Absent
2 1. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH5 HACHINSKI ITEM 5, HYPERTENSION HISTORY
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
5. History of hypertension
.................................................................................
12 0. Absent
35 1. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH6 HACHINSKI ITEM 6, STROKE/TIA HISTORY
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
6. History of stroke or TIA
.................................................................................
33 0. Absent
14 2. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH7 HACHINSKI ITEM 7, FOCAL NEUROL SYMPTOMS
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
7. Focal neurological symptoms
.................................................................................
35 0. Absent
12 2. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACH8 HACHINSKI ITEM 8, FOCAL NEUROL SIGNS
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
8. Focal neurological signs
.................................................................................
37 0. Absent
10 2. Present
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDHACHSC HACHINSKI - CALCULATED SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
.................................................................................
47 0-12. Total score
268 Blank. Not assessed/Not asked CDHACHCP = 5
==========================================================================================
CDDRSCP DSRS - WHETHER COMPLETED
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was completed
The DSRS is an informant-completed multiple-choice questionnaire that assesses
severity of cognitive and functional impairment in domains that are typically
affected by Alzheimer's disease (AD). There are 12 items assessing the
following domains: memory, orientation, judgment, social interactions/ community
affairs, home activities/responsibilities, personal care, speech/language,
recognition of others, feeding, incontinence, mobility/walking, and
informant-perceived stress. More information about this scale and how scores
were assigned can be found in the data description.
.................................................................................
301 1. Yes
14 5. No
==========================================================================================
CDDRSSPN DSRS - DONE IN SPANISH
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was conducted in Spanish.
.................................................................................
6 1. Yes
309 Blank. No
==========================================================================================
CDINFGEN DSRS GENDER OF INFORMANT
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
73 1. Male
228 2. Female
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSREL DSRS INFORMANT RELATIONSHIP TO SUBJECT
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
114 1. Spouse
105 2. Child
12 3. Sibling
4. Parent
29 5. Friend
6. Guardian
4 7. Neighbor
37 8. Other
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN1 DSRS MEMORY SCORE
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: NEWDSRS1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
Please note that the DSRS in Wave C differs from the version of the DSRS used in
Waves A and B.
.................................................................................
122 0. Normal
114 1. Occasionally forgets things that they were told recently.
Does not cause many problems.
32 2. Mild consistent forgetfulness. Remembers recent events but
often forgets parts.
19 3. Moderate memory loss. Worse for recent events. May not
remember something you just told them. Causes problems with
everyday activities.
8 4. Substantial memory loss. Quickly forgets recent or
newly-learned things. Can only remember things that they
have known for a long time.
6 5. Does not remember basic facts like the day of the week, when
last meal was eaten, or what the next meal will be.
6. Does not remember even the most basic things.
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN2 DSRS SPEECH AND LANGUAGE SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
210 0. Normal ability to talk and to understand others.
62 1. Sometimes cannot find a word but able to carry on
conversations.
19 2. Often forgets words. May use the wrong word in its place.
Some trouble expressing thoughts and giving answers.
6 3. Usually answers questions using sentences but rarely starts
a conversation.
3 4. Answers questions, but responses are often hard to
understand or don't make sense. Usually able to follow
simple instructions.
1 5. Speech often does not make sense. Cannot answer questions or
follow instructions.
6. Does not respond most of the time.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN3 DSRS RECOGNITION OF FAMILY MEMBERS SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
269 0. Normal. Recognizes people and generally knows who they are.
24 1. Usually recognizes grandchildren, cousins, or relatives who
are not seen frequently but may not recall how they are
related.
7 2. Usually does not recognize family members who are not seen
frequently. Is often confused about how family members such
as grandchildren, nieces, or nephews are related to them.
1 3. Sometimes does not recognize close family members or others
who they see frequently. May not recognize their children,
brothers, or sisters who are not seen on a regular basis.
4. Frequently does not recognize spouse or caregiver.
5. No recognition or awareness of the presence of others.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN4 DSRS ORIENTATION TO TIME SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS4
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
218 0. Normal awareness of time of day and day of week.
70 1. Some confusion about what time it is or what day of the week
but not severe enough to interfere with everyday activities.
10 2. Frequently confused about time of day.
3 3. Almost always confused about the time of day.
4. Seems completely unaware of time.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN5 DSRS ORIENTATION TO PLACE SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS5
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
219 0. Normal awareness of where they are even in new places.
67 1. Sometimes disoriented in new places.
14 2. Frequently disoriented in new places.
1 3. Usually disoriented, even in familiar places. May forget
that they are already at home.
4. Almost always confused about place.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN6 DSRS ABILITY TO MAKE DECISIONS SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS6
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
210 0. Normal. As able to make decisions as before.
52 1. Only some difficulty making decisions that arise in
day-to-day life.
25 2. Moderate difficulty. Gets confused when things get
complicated or plans change.
13 3. Rarely makes any important decisions. Gets confused easily.
1 4. Not able to understand what is happening most of the time.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN7 DSRS SOCIAL AND COMMUNITY ACTIVITY SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS7
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
223 0. Normal. Acts the same with people as before
43 1. Only mild problems that are not really important but clearly
acts differently from previous years.
23 2. Can still take part in community activities without help.
May appear normal to people who don't know them.
7 3. Often has trouble dealing with people outside the home
without help from caregiver. Usually can participate in
quiet home activities with friends. The problem is clear to
anyone who sees them.
5 4. No longer takes part in any real way in activities at home
involving other people. Can only deal with the primary
caregiver.
5. Little or no response even to primary caregiver.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN8 DSRS HOME ACTIVITIES, RESPONSIBILITIES SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS8
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
189 0. Normal. No decline in ability to do things around the house.
76 1. Some problems with home activities. May have more trouble
with money management (paying bills) and fixing things. Can
still go to a store, cook, or clean. Still watches TV or
reads a newspaper with interest and understanding.
20 2. Makes mistakes with easy tasks like going to a store,
cooking, or cleaning. Losing interest in the newspaper, TV
or radio. Often can't follow a long conversation on a single
topic.
3 3. Not able to shop, cook, or clean without a lot of help. Does
not understand the newspaper or the TV. Cannot follow a
conversation.
13 4. No longer does any home-based activities.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN9 DSRS PERSONAL CARE SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS9
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
255 0. Normal. Takes care of self as well as they used to.
23 1. Sometimes forgets to wash, shave, comb hair, or may dress in
wrong type of clothes. Not as neat as they used to be.
16 2. Requires help with dressing, washing, and personal grooming.
7 3. Totally dependent on help for personal care.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN10 DSRS EATING SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS10
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
268 0. Normal. Does not need help in eating food that is served to
them.
31 1. May need help cutting food or have trouble with some foods
but basically able to eat by themselves.
2 2. Generally able to feed themselves but may require some help.
May lose interest during the meal.
3. Needs to be fed. May have trouble swallowing.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN11 DSRS INCONTINENCE, BOWEL CONTROL SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS11
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
238 0. Normal. Does not have problems controlling urination or
bowels except for physical problems.
25 1. Rarely fails to control urination (generally less than one
accident per month).
13 2. Occasional failure to control urination (about once a week
or less).
17 3. Frequently fails to control urination (more than once a
week).
8 4. Generally fails to control urination and frequently can not
control bowels.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSN12 DSRS MOBIILTY SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRS12
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
In each section, please circle the number that most closely applies to your
[subject relationship to informant]. This is a general form, so no one
description may be exactly right. Please circle the answer that seems to apply
most of the time. Please circle only one number per section, and be sure to
answer all questions.
.................................................................................
252 0. Normal. Able to get around on their own. (May have physical
problems that require a cane or walker).
20 1. Sometimes gets confused when driving or taking public
transportation, especially in new places. Able to walk
places alone.
17 2. Cannot drive or take public transportation alone, even in
familiar places. Can walk alone outside for short distances.
Might get lost if walking too far from home.
4 3. Cannot be left outside alone. Can get around the house
without getting lost or confused.
1 4. Gets confused and needs help finding their way around the
house.
3 5. Almost always in a bed or chair. May be able to walk a few
steps with help, but lacks sense of direction.
4 6. Always in bed. Unable to sit or stand.
98. DK (Don't Know)
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDDRSSCR DSRS SCORE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEWDSRSSCR
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Please note that the DSRS in Wave C differs from the version of the DSRS used in
Waves A and B.
.................................................................................
301 0-32. DSRS SCORE
14 Blank. Not assessed/Not asked CDDRSCP =5
==========================================================================================
CDBLCP BLESSED DEMENTIA RATING SCALE COMPLETED
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
The Blessed Dementia Rating Scale - CERAD is a standardized research instrument
that characterizes performance of activities of daily living that are often
affected by dementia. The informant was instructed to rate whether the subject
had no loss, some loss or severe loss of ability in a number of areas of
cognition and everyday activities. For three items assessing activities of
daily living (i.e., eating, dressing, toileting), the informant reported the
level of assistance the subject needed on a three-point scale. For all items,
the informant also noted whether the loss of ability or the need for assistance
in each area was due to Mental (i.e. cognitive) and/or Physical reasons. The
score is weighted based on the severity of the loss. The only items counted in
the score are losses for which the cause is 'Mental' or 'Both' (Mental and
Physical). More information about this scale and how scores were assigned can
be found in the data description.
.................................................................................
305 1. Yes
10 5. No
==========================================================================================
CDBL1A BLESSED SCORE-PERFORM HOUSEHOLD TASKS
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Perform household tasks
.................................................................................
181 0. None
82 0.5. Some
42 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1AR REASON FOR BLESSED SCORE - CDBL1A
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
98 0. Physical
8 1. Mental
18 2. Both physical and mental
191 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1B BLESSED SCORE-COPE WITH SMALL SUMS MONEY
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Cope with small sums of money
.................................................................................
273 0. None
18 0.5. Some
14 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1BR BLESSED REASON FOR SCORE - CDBL1B
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
8 0. Physical
21 1. Mental
3 2. Both physical and mental
283 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1C BLESSED SCORE-REMEMBER SHORT LIST ITEMS
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Remember a short list of items (e.g., shopping list)
.................................................................................
212 0. None
75 0.5. Some
18 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1CR REASON FOR BLESSED SCORE - CDBL1C
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
87 1. Mental
6 2. Both physical and mental
222 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1D BLESSED SCORE-FIND WAY ABOUT INDOORS
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way about indoors (home or other familiar locations)
.................................................................................
286 0. None
14 0.5. Some
5 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1DR REASON FOR BLESSED SCORE - CDBL1D
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
6 0. Physical
8 1. Mental
5 2. Both physical and mental
296 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1E BLESSED SCORE-FIND WAY FAMILIAR STREETS
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way around familiar streets
.................................................................................
257 0. None
27 0.5. Some
21 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1ER REASON FOR BLESSED SCORE - CDBL1E
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
14 0. Physical
25 1. Mental
9 2. Both physical and mental
267 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1F BLESSED SCORE-GRASP SITUATIONS
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Grasp situations or explanations
.................................................................................
245 0. None
53 0.5. Some
7 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1FR REASON FOR BLESSED SCORE - CDBL1F
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
4 0. Physical
47 1. Mental
9 2. Both physical and mental
255 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1G BLESSED SCORE-RECALL RECENT EVENTS
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Recall recent events
.................................................................................
209 0. None
81 0.5. Some
15 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1GR REASON FOR BLESSED SCORE - CDBL1G
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
89 1. Mental
7 2. Both physical and mental
219 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1H BLESSED SCORE-DWELL IN THE PAST
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Tendency to dwell in the past
.................................................................................
256 0. None
37 0.5. Some
12 1. Severe
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL1HR REASON FOR BLESSED SCORE - CDBL1H
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
2 0. Physical
44 1. Mental
3 2. Both physical and mental
266 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL2EA BLESSED SCORE - EATING
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
289 0. Feeds self without assistance
14 1. Feeds self with minor assistance
1 2. Feeds self with much assistance
1 3. Has to be fed
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL2EAR REASON FOR BLESSED SCORE - CDBL2EA
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
15 0. Physical
1 1. Mental
2. Both physical and mental
299 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL2DRE BLESSED SCORE - DRESSING
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
260 0. Unaided
29 1. Occasionally misplaces buttons, etc., requires minor help
5 2. Wrong sequences, forgets items, requires much assistance
11 3. Unable to dress
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL2DRR REASON FOR BLESSED SCORE - CDBL2DRE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
38 0. Physical
2 1. Mental
5 2. Both physical and mental
270 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL2TO BLESSED SCORE - TOILET
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
248 0. Clean, cares for self at toilet
32 1. Occasional incontinence, or needs to be reminded
17 2. Frequent incontinence, or needs much assistance
8 3. Little or no control
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL2TOR REASON FOR BLESSED SCORE - CDBL2TO
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
50 0. Physical
2 1. Mental
5 2. Both physical and mental
258 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBLSCOR BLESSED SCALE SCORE
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
305 0-17. Total score of all Blessed dementia items
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBLPG2S BLESSED PAGE 2 OF SCALE NOT APPROPRIATE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Page 2 of the Blessed Dementia Scale was completed only if the respondent had
advanced dementia. The nurse determined whether to administer this section
based on his/her clinical judgment whether these behaviors were relevant for a
respondent given his/her level of impairment. This variable is a checkpoint
for whether Page 2 was skipped (inapplicable) or not.
.................................................................................
293 1. Page 2 of Blessed not completed
12 5. Page 2 of Blessed completed
10 Blank. Not assessed/Not asked CDBLCP = 5
==========================================================================================
CDBL31 BLESSED SCORE-LOSS RECOGNITION CAREGIVER
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Loss of recognition of immediate caregiver
.................................................................................
10 0. None/Normal
1 1. Occasional
1 2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL32 BLESSED SCORE-IMPAIRED AMBULATION
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Impaired ambulation (for non-physical reasons)
.................................................................................
12 0. None/Normal
1. Occasional
2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL33 BLESSED SCORE-WANDERING
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Wandering
.................................................................................
11 0. None/Normal
1 1. Occasional
2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL34 BLESSED SCORE-LOSS OF AWARE/COMPR/COMM
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Overall loss of awareness, comprehension, or communication (underscore which)
.................................................................................
7 0. None/Normal
4 1. Occasional
1 2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL35 BLESSED SCORE-SERIOUS BEHAVIORAL PX
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Serious behavioral problem (noisy, angry, combative, etc.)
.................................................................................
11 0. None/Normal
1. Occasional
1 2. Frequent
3. Consistent
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL36 BLESSED SCORE-INABILITY FIND WAY IN HOME
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to find way in own home
.................................................................................
9 0. No
3 1. Yes
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL37 BLESSED SCORE-INABILITY TO USE TELEPHONE
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to telephone (at least one number)
.................................................................................
9 0. No
3 1. Yes
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL38 BLESSED SCORE-MONITOR WHAT/HOW EAT FOOD
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Need for monitoring what and how food is eaten (e.g., to prevent eating spoiled
foods, choking on bulky foods)
.................................................................................
7 0. No
4 1. Yes
1 98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL39 BLESSED SCORE-SLEEP DISTURBANCES
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Sleep disturbances that keep caregiver awake
.................................................................................
10 0. No
1 1. Yes
98. DK (Don't Know)
99. RF (Refused)
304 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL310 BLESSED SCORE-LEFT ALONE ALL DAY/NIGHT
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
If necessary, could patient be left alone for entire day and night?
.................................................................................
8 0. No
4 1. Yes
98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL311 BLESSED SCORE-LEFT ALONE AT NIGHT
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Could he or she usually be left alone at night?
.................................................................................
3 0. No
5 1. Yes
98. DK (Don't Know)
99. RF (Refused)
307 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDBL312 BLESSED SCORE-HOW LONG LEFT ALONE IN DAY
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For how long could subjects be left alone during day?
.................................................................................
2 0. Not at all
3 1. Less than 2 hours (permitting caregiver to run errands)
3 2. 2-8 hours (permitting caregiver to hold job)
3. More than 8 hours
98. DK (Don't Know)
99. RF (Refused)
307 Blank. Not assessed/Not asked (CDBLCP = 5 or CDBLPG2S = 1)
==========================================================================================
CDMHCP MEDICAL HISTORY COMPLETED
Section: CD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Category: MEDICAL HISTORY
.................................................................................
308 1. Yes
7 5. No
==========================================================================================
CDMH1 EVER SEEN DOCTOR FOR MEMORY PROBLEMS
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
The next few questions are about (SUBJECT NAME's) medical history. First, has
(SUBJECT NAME) ever seen a doctor for any of the memory problems we have
discussed? (If no memory problems endorsed, ask if subject has seen a doctor
for any concerns with her/his memory or thinking).
If answer is 'No,' 'Don't Know,' or 'Refused,' then skip the remainder of the
following medical history questions pertaining to memory problem evaluation.
.................................................................................
18 1. Yes
283 5. No (Skip Medical History Items 3-10)
7 98. DK (Don't Know) (Skip Medical History Items 3-10)
99. RF (Refused) (Skip Medical History Items 3-10)
7 Blank. Not assessed/Not asked CDMHCP = 5
==========================================================================================
CDMH3 SPECIALTY OF DOCTOR FOR CDMH1
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
7 1. Neurologist
1 2. Psychiatrist
6 3. Family Practitioner/Internal Med
1 4. Geriatrician
1 7. Other (Specify)
2 98. DK (Don't Know)
99. RF (Refused)
297 Blank. Not assessed/Not asked
==========================================================================================
CDMH4MO MONTH OF EXAM FOR CDMH1
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1 1. January
1 2. February
2 3. March
1 4. April
5. May
2 6. June
7. July
3 8. August
9. September
10. October
2 11. November
12. December
6 98. DK (Don't Know)
297 Blank. Not assessed/Not asked CDMHCP = 5
==========================================================================================
CDMH4YR YEAR OF EXAM FOR CDMH1
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
4 2005. Year
9 2006. Year
4 2007. Year
1 9998. DK (Don't Know)
297 Blank. Not assessed/Not asked
==========================================================================================
CDMH5 CAUSE OF MEMORY PROBLEM AS PER DOCTOR
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What did the doctor say was the cause of the memory trouble?
.................................................................................
1 1. Normal Aging
2 2. AD
3 3. VaD, Strokes or TIAS
2 4. Dementia
1 5. Parkinson's Disease
1 6. Depression
2 7. Other (Specify)
6 98. DK (Don't Know)
99. RF (Refused)
297 Blank. Not assessed/Not asked
==========================================================================================
CDMH6 SEE OTHER SPECIALIST FOR MEMORY PROBLEMS
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
Did (SUBJECT NAME) ever have an examination with a specialist such as a
neurologist or psychiatrist for memory problems?
This question was asked if the doctor asked about in CDMH1 is not a specialist.
.................................................................................
1. Yes
11 5. No (Skip Medical History Items 7-9)
1 98. DK (Don't Know)
99. RF (Refused)
303 Blank. Not assessed/Not asked
==========================================================================================
CDMH8 SPECIALTY OF DOCTOR IN CDMH6
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1. Neurologist
2. Psychiatrist
4. Geriatrician
7. Other (Specify)
98. DK (Don't Know)
99. RF (Refused)
315 Blank. Not assessed/Not asked
==========================================================================================
CDMH8MO MONTH OF SPECIALTY EXAM
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1. January
2. February
3. March
4. April
5. May
6. June
7. July
8. August
9. September
10. October
11. November
12. December
98. DK (Don't Know)
315 Blank. Not assessed/Not asked
==========================================================================================
CDMH8YR YEAR OF SPECIALTY EXAM
Section: CD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
2005. Year
2006. Year
2007. Year
9998. DK (Don't Know)
315 Blank. Not assessed/Not asked
==========================================================================================
CDMH9 CAUSE OF MEMORY PROB. AS PER SPECIALIST
Section: CD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What diagnosis was given for the cause of the problems?
.................................................................................
1. Normal Aging
2. AD
3. VaD, Strokes or TIAS
4. Dementia
5. Parkinson's Disease
6. Depression
7. Other (Specify)
98. DK (Don't Know)
99. RF (Refused)
315 Blank. Not assessed/Not asked
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