==========================================================================================
Section BD: ASSESSMENT DATA PART II: DEMENTIA DIAGNOSES/SUMMARY SCORES - FOLLOW-UP VISIT (Respondent)
==========================================================================================
HHID HRS HOUSEHOLD IDENTIFIER
Section: BD Level: Respondent Type: Character Width: 6 Decimals: 0
This variable uniquely identifies an original HRS household across waves.
.................................................................................
252 012513-213468. Household Identification Number
==========================================================================================
PN HRS PERSON NUMBER
Section: BD Level: Respondent Type: Character Width: 3 Decimals: 0
Each HRS respondent has a Person Number, PN, unique within an original
household. In combination, HHID and PN uniquely identify a respondent across
all waves of the study.
.................................................................................
160 010. Person Number
6 011. Person Number
56 020. Person Number
1 021. Person Number
11 030. Person Number
17 040. Person Number
1 041. Person Number
==========================================================================================
ADAMSSID ADAMS SUBJECT IDENTIFIER
Section: BD Level: Respondent Type: Character Width: 5 Decimals: 0
This variable identifies an ADAMS subject in the ADAMS data files.
.................................................................................
252 00081-21311. ADAMS Subject Identification Number
==========================================================================================
BDCCDX1 FOLLOW-UP VISIT PRIMARY DX (NO MED RECS)
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
.................................................................................
18 1. Probable AD
33 2. Possible AD
3. Probable Vascular Dementia
5 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
1 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
38 20. Mild-ambiguous
13 21. Cognitive impairment secondary to vascular disease
4 22. Mild Cognitive Impairment
3 23. Depression
2 24. Psychiatric Disorder
8 25. Mental Retardation
2 26. Alcohol Abuse (past)
4 27. Alcohol Abuse (current)
15 28. Stroke
9 29. Other Neurological conditions
29 30. Other Medical conditions
59 31. Normal/Non-case
32. Possible Lewy Body dementia
9 33. CIND, non-specified
==========================================================================================
BDCCDX2 FOL-UP VISIT SECONDARY DX (NO MED RECS)
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a secondary diagnosis.
.................................................................................
1. Probable AD
1 2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
2 20. Mild-ambiguous
1 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
1 24. Psychiatric Disorder
1 25. Mental Retardation
7 26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
1 28. Stroke
4 29. Other Neurological conditions
13 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
215 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
BDCCDX3 FOL-UP VISIT TERTIARY DX (NO MED RECS)
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a tertiary diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
23. Depression
24. Psychiatric Disorder
25. Mental Retardation
1 26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
251 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
BDCCMDX1 FOL-UP VISIT PRIMARY DX (W/ MED RECS)
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCMDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable.
.................................................................................
10 1. Probable AD
13 2. Possible AD
1 3. Probable Vascular Dementia
3 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
1 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
10 20. Mild-ambiguous
8 21. Cognitive impairment secondary to vascular disease
2 22. Mild Cognitive Impairment
23. Depression
24. Psychiatric Disorder
3 25. Mental Retardation
1 26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
11 28. Stroke
1 29. Other Neurological conditions
11 30. Other Medical conditions
16 31. Normal/Non-case
32. Possible Lewy Body dementia
1 33. CIND, non-specified
157 97. No diagnosis assigned based on med record review
==========================================================================================
BDCCMDX2 FOL-UP VISIT SECONDARY DX (W/ MED RECS)
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCMDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a secondary
diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
1 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
2 23. Depression
24. Psychiatric Disorder
1 25. Mental Retardation
3 26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
1 28. Stroke
2 29. Other Neurological conditions
6 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
157 97. No diagnosis assigned based on med record review
79 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
BDCCMDX3 FOL-UP VISIT TERTIARY DX (W/ MED RECS)
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCMDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a tertiary
diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
23. Depression
24. Psychiatric Disorder
25. Mental Retardation
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
157 97. No diagnosis assigned based on med record review
95 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
BDFDX1 FOL-UP VISIT FINAL PRIMARY DIAGNOSIS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AFDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the "final" primary research diagnosis following the
initial assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
25 1. Probable AD
26 2. Possible AD
1 3. Probable Vascular Dementia
4 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
1 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
38 20. Mild-ambiguous
13 21. Cognitive impairment secondary to vascular disease
4 22. Mild Cognitive Impairment
3 23. Depression
2 24. Psychiatric Disorder
8 25. Mental Retardation
2 26. Alcohol Abuse (past)
4 27. Alcohol Abuse (current)
16 28. Stroke
9 29. Other Neurological conditions
29 30. Other Medical conditions
59 31. Normal/Non-case
32. Possible Lewy Body dementia
8 33. CIND, non-specified
==========================================================================================
BDFDX2 FOL-UP VISIT FINAL SECONDARY DIAGNOSIS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AFDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the "final" secondary research diagnosis following the
initial assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
1. Probable AD
1 2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
2 20. Mild-ambiguous
2 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
1 24. Psychiatric Disorder
1 25. Mental Retardation
7 26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
1 28. Stroke
4 29. Other Neurological conditions
15 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
212 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
BDFDX3 FOL-UP VISIT FINAL TERTIARY DIAGNOSIS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AFDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the "final" tertiary research diagnosis following the
initial assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
23. Depression
24. Psychiatric Disorder
25. Mental Retardation
1 26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
251 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
BDONSET AGE OF ONSET FOR SUBJECT WITH DEMENTIA
Section: BD Level: Respondent Type: Numeric Width: 3 Decimals: 0
Ref: CURRONSET
This variable is the age of onset for dementia and was assigned if a subject was
assigned a diagnosis of dementia based on the initial assessment (in section AD)
or at the follow-up assessment (in section BD).
.................................................................................
57 71-103. Age of onset of dementia
195 Blank. Inapplicable or no age assigned
==========================================================================================
BDCDRCP CDR SCALE COMPLETED
Section: BD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: CDRCOMP
Category: FOLLOW-UP ASSESSMENT DATA
Measure: CDR - CLINICAL DEMENTIA RATING
Whether the CDR Scale was completed.
The CDR quantifies severity of dementia in several different areas of
functioning. The CDR reflects an indirect evaluation of cognition and
functional performance based on information obtained from both the informant and
subject during the course of the evaluation. The CDR rating was assigned for
all subjects, regardless of dementia status. More information about the CDR and
how scores were assigned can be found in the data description.
.................................................................................
252 1. Yes
5. No
==========================================================================================
BDCDRS1 CDR ITEM 1 SCORE, MEMORY
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
27 0. No Dementia
167 0.5. Mild Impairment
55 1. Mild Dementia
3 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDCDRS2 CDR ITEM 2 SCORE, ORIENTATION
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
96 0. No Dementia
104 0.5. Mild Impairment
49 1. Mild Dementia
3 2. Moderate Dementia
3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDCDRS3 CDR ITEM 3 SCORE, JUDGEMENT
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
86 0. No Dementia
103 0.5. Mild Impairment
59 1. Mild Dementia
3 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDCDRS4 CDR ITEM 4 SCORE, COMM AFFAIRS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM4
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
133 0. No Dementia
81 0.5. Mild Impairment
35 1. Mild Dementia
2 2. Moderate Dementia
1 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDCDRS5 CDR ITEM 5 SCORE, HOME/HOBBY
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM5
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
138 0. No Dementia
71 0.5. Mild Impairment
39 1. Mild Dementia
2 2. Moderate Dementia
2 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDCDRS6 CDR ITEM 6 SCORE, PERSONAL CARE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SUBITEM6
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
222 0. No Dementia
24 1. Mild Dementia
3 2. Moderate Dementia
3 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDCDRSTG CDR - CALCULATED OVERALL SCORE
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: STAGING
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
27 0. No Dementia
185 0.5. Mild Impairment
37 1. Mild Dementia
1 2. Moderate Dementia
2 3. Severe Dementia
4. Profound Dementia
5. Terminal Dementia
97. Not assessed/Not asked
==========================================================================================
BDHACHCP HACHINSKI SCALE COMPLETED
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HACHCOMP
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Whether the Hachinski Scale was completed.
The Modified Hachinski Scale is designed to assess a number of risk factors for
vascular dementia. This form was only completed if a diagnosis of dementia was
assigned to a subject. More information about this scale and how scores were
assigned can be found in the data description.
.................................................................................
47 1. Yes
205 5. No
==========================================================================================
BDHACH1 HACHINSKI ITEM 1, ABRUPT DEMENTIA ONSET
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ABRUPT
Category: FOLLOW-UP ASSESSMENT DATA
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
1. Abrupt onset
.................................................................................
43 0. Absent
4 2. Present
205 97. Not assessed/Not asked
==========================================================================================
BDHACH2 HACHINSKI ITEM 2, STEPWISE DETERIORATION
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: STEPWISE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
2. Stepwise deterioration
.................................................................................
46 0. Absent
1 1. Present
205 97. Not assessed/Not asked
==========================================================================================
BDHACH3 HACHINSKI ITEM 3, SOMATIC COMPLAINTS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SOMATIC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Somatic complaints
.................................................................................
47 0. Absent
1. Present
205 97. Not assessed/Not asked
==========================================================================================
BDHACH4 HACHINSKI ITEM 4, EMOTIONAL INCONTINENCE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: E_INCONT
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Emotional incontinence
.................................................................................
47 0. Absent
1. Present
205 97. Not assessed/Not asked
==========================================================================================
BDHACH5 HACHINSKI ITEM 5, HYPERTENSION HISTORY
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HYPERHX
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
History of hypertension
.................................................................................
12 0. Absent
35 1. Present
205 97. Not assessed/Not asked
==========================================================================================
BDHACH6 HACHINSKI ITEM 6, STROKE/TIA HISTORY
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: STROKEHX
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
History of stroke or TIA
.................................................................................
32 0. Absent
15 2. Present
205 97. Not assessed/Not asked
==========================================================================================
BDHACH7 HACHINSKI ITEM 7, FOCAL NEUROL SYMPTOMS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: FOCALSX
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Focal neurological symptoms
.................................................................................
37 0. Absent
9 2. Present
205 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
BDHACH8 HACHINSKI ITEM 8, FOCAL NEUROL SIGNS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEURSIGN
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Focal neurological signs
.................................................................................
39 0. Absent
7 2. Present
205 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
BDHACHSC HACHINSKI - CALCULATED SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HSCORE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
.................................................................................
47 0-9. Total score
205 97. Not assessed/Not asked
==========================================================================================
BDDRSCP DSRS - WHETHER COMPLETED
Section: BD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: DRSCOMP
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was completed
The DSRS is an informant-completed multiple-choice questionnaire that assesses
severity of cognitive and functional impairment in domains that are typically
affected by Alzheimer's disease (AD). There are 12 items assessing the
following domains: memory, orientation, judgment, social interactions/ community
affairs, home activities/responsibilities, personal care, speech/language,
recognition of others, feeding, incontinence, mobility/walking, and
informant-perceived stress. More information about this scale and how scores
were assigned can be found in the data description.
.................................................................................
232 1. Yes
20 5. No
==========================================================================================
BDDRSSPN DSRS - DONE IN SPANISH
Section: BD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: DRSSPAN
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was conducted in Spanish.
.................................................................................
1. Yes
252 5. No
==========================================================================================
BDINFGEN DSRS GENDER OF INFORMANT
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: GENDER
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
48 1. Male
184 2. Female
20 97. Not assessed/Not asked
==========================================================================================
BDDRSREL DSRS INFORMANT RELATIONSHIP TO SUBJECT
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: RELDSRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
85 1. Spouse
82 2. Child
7 3. Sibling
4. Parent
14 5. Friend
6. Guardian
1 7. Neighbor
43 8. Other
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRSRLS DSRS SPECIFY IF BDDRSREL=OTHER
Section: BD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: RELSPDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
==========================================================================================
BDDRS1 DSRS MEMORY SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MEMDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.
.................................................................................
45 1. Normal
120 2. Occasional forgetfulness of no real significance
41 3. Frequent noticeable forgetfulness, but still has partial
recollection of events
15 4. Moderate memory loss, more marked for recent events, and
severe enough to interfere with everyday activities
5 5. Severe memory loss; only well-learned material retained,
with newly-learned material rapidly lost
6 6. Usually unable to remember simple facts such as the day of
the week, month and/or year, when last meal eaten or name of
next meal
7. Unable to evaluate memory because of speech or language
difficulty and/or inability to follow instructions
8. Questions about memory not meaningful; makes no attempt to
communicate and is no longer aware of surroundings
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS2 DSRS ORIENTATION SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ORIENDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
82 1. Normal
130 2. Some difficulty keeping track of dates and times, but not
severe enough to interfere with everyday activities
17 3. Frequently disoriented in time and sometimes disoriented to
new place
4. Almost always disoriented in time and usually disoriented to
place
3 5. Unable to understand or answer questions about time of day
or name of present location
6. Is unaware of questions and makes no attempt to respond
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS3 DSRS JUDGEMENT SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: JUDGDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
109 1. Normal
54 2. Only questionable impairment in problem solving ability
63 3. Moderate difficulty in handling complex problems, but social
judgment is usually maintained
4 4. Severe impairment in handling problems, social judgment
impaired
2 5. Unable to exercise judgment in either problem solving or
social situations
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS4 DSRS SOCIAL INTERACTIONS SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SOCDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
104 1. No alteration in ability to participate in community affairs
85 2. Only mild impairment, of no practical consequence but
clearly different from previous years. Still able to work
(if applicable) but performance not up to previous standards
25 3. Unable to function independently in community activities
although still able to participate to some extent and, to
casual observer, may appear normal. Unable to hold a job
or, if still working, requires constant supervision
12 4. Clearly incapable of independent function outside of the
home. Unable to hold a job but still participates in home
activities with friends. Casual acquaintances are aware of
a problem
6 5. No longer participates in any meaningful way in home-based
social activities involving people other than the primary
caregiver
20 97. Not assessed/Not asked
==========================================================================================
BDDRS5 DSRS HOME ACTIVITIES, RESPONSIBILITIES
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HOMEDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
99 1. Normal
87 2. Some impairment in activities such as money management and
house maintenance, but no effect on ability to shop, cook or
clean. Still watches TV and reads newspaper with interest
and some understanding
29 3. Unable to perform activities related to money management
(bill paying, etc.) or complex household tasks
(maintenance). Some difficulty with shopping, cooking
and/or cleaning. Losing interest in the newspaper and TV
6 4. No longer able to shop, cook or clean without considerable
help and supervision. No longer able to read the newspaper
or watch TV with comprehension
11 5. No longer engages in any purposeful home-based activities,
dependent on others for these tasks
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS6 DSRS PERSONAL CARE SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: PERSDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
146 1. Normal
57 2. Needs occasional prompting but washes and dresses
independently
11 3. Able to dress and groom self but requires supervision to
avoid embarrassing errors or omissions
10 4. Able to participate in dressing or personal hygiene but
requires constant supervision
8 5. Totally dependent on help for dressing or grooming. Does
not initiate personal care activities
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS7 DSRS SPEECH LANGUAGE SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LANGDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
128 1. Normal
89 2. Occasional trouble finding words or other speech errors, but
able to carry on conversations
13 3. Frequently unable to think of words, may make inappropriate
word substitutions or use nonsense expressions. Has
difficulty following complex conversations
1 4. No longer able to hold extended conversations because of
difficulties comprehending others or expressing self. Can
usually answer questions using simple sentences
1 5. Answers questions, but the responses are often
unintelligible or nonsensical. Able to follow only simple
instructions
6. Speech usually unintelligible or irrelevant. Unable to
understand or answer questions or to follow verbal
instructions
7. No response, no longer attempts to communicate
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS8 DSRS RECOGNITION OF OTHERS SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: RECOGDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
136 1. Normal
55 2. Occasionally fails to recognize distant acquaintances or
casual friends
33 3. Always recognizes family and close friends but frequently
fails to recognize others
8 4. Occasionally fails to recognize family members and/or close
friends
5. Only occasionally recognizes spouse or caregiver
6. No recognition or awareness of the presence of others
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS9 DSRS FEEDING SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: FEEDDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
197 1. Normal
31 2. May require help cutting food but otherwise able to eat
independently
2 3. Mostly able to eat independently but may require some
assistance. Occasionally uses fingers or wrong utensils
1 4. Requires assistance. Uses fingers more than utensils
1 5. Totally dependent on others for feeding. May have
difficulty swallowing or require feeding tube
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRS10 DSRS INCONTINENCE SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: INCONDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
148 1. Normal
39 2. Loses control of bladder rarely (generally less than one
accident per month)
25 3. Loses control of bladder an average of two or more times a
month
13 4. Frequently loses control of bladder despite help to toilet
(more than once a week)
6 5. Total loss of bladder control
20 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
BDDRS11 DSRS MOBILITY, WALKING SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MOBILDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
106 1. Normal
28 2. May occasionally have some difficulty driving or taking
public transportation but fully independent for walking
without supervision
19 3. Able to walk outside without supervision for short distances
but unable to drive or take public transportation
9 4. Able to walk within the home without supervision but cannot
go outside unaccompanied
5 5. Requires supervision within the home but able to walk
without assistance (may use cane or walker)
3 6. Generally confined to a bed or chair. May be able to walk a
few steps with help
7. Essentially bedridden. Unable to sit or stand
20 97. Not assessed/Not asked
62 98. DK (Don't Know)
==========================================================================================
BDDRS12 DSRS DEGREE ILLNESS AFFECTS INFORM ABIL
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: RDEGREE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
12. By placing a mark on the line please rate the degree that this illness
affects your ability to carry on a normal life style.
-------------------------------------------------------------------------
1 2 3 4 5 6 7 8 9 10
no some stress highly can no
problem but tolerable stressful longer cope
.................................................................................
232 1-8. Rating
20 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDDRSSCR DSRS SCORE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: DRSSCOR
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
==========================================================================================
BDBLCP BLESSED DEMENTIA RATING SCALE COMPLETED
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: BLESSDON
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
The Blessed Dementia Rating Scale - CERAD is a standardized research instrument
that characterizes performance of activities of daily living that are often
affected by dementia. The informant was instructed to rate whether the subject
had no loss, some loss or severe loss of ability in a number of areas of
cognition and everyday activities. For three items assessing activities of
daily living (i.e., eating, dressing, toileting), the informant reported the
level of assistance the subject needed on a three-point scale. For all items,
the informant also noted whether the loss of ability or the need for assistance
in each area was due to Mental (i.e. cognitive) and/or Physical reasons. The
score is weighted based on the severity of the loss. The only items counted in
the score are losses for which the cause is 'Mental' or 'Both' (Mental and
Physical). More information about this scale and how scores were assigned can
be found in the data description.
.................................................................................
245 1. Yes
7 5. No
==========================================================================================
BDBL1A BLESSED SCORE-PERFORM HOUSEHOLD TASKS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: TASKSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Perform household tasks
.................................................................................
104 0. None
89 0.5. Some
52 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1AR BLESSED REASON FOR SCORE - BDBL1A
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: TASKRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
96 0. Physical
7 1. Mental
38 2. Both physical and mental
104 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1B BLESSED SCORE-COPE WITH SMALL SUMS MONEY
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: CASHSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Cope with small sums of money
.................................................................................
211 0. None
29 0.5. Some
5 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1BR BLESSED REASON FOR SCORE - BDBL1B
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CASHRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
8 0. Physical
18 1. Mental
8 2. Both physical and mental
211 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1C BLESSED SCORE-REMEMBER SHORT LIST ITEMS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: LISTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Remember a short list of items (e.g., shopping list)
.................................................................................
121 0. None
106 0.5. Some
18 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1CR BLESSED REASON FOR SCORE - BDBL1C
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LISTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
120 1. Mental
4 2. Both physical and mental
121 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1D BLESSED SCORE-FIND WAY ABOUT INDOORS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: HOMESC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way about indoors (home or other familiar locations)
.................................................................................
218 0. None
22 0.5. Some
5 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1DR BLESSED REASON FOR SCORE - BDBL1D
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HOMERE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
1 0. Physical
18 1. Mental
8 2. Both physical and mental
218 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1E BLESSED SCORE-FIND WAY FAMILIAR STREETS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: STRTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way around familiar streets
.................................................................................
186 0. None
45 0.5. Some
14 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1ER BLESSED REASON FOR SCORE - BDBL1E
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: STRTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
10 0. Physical
36 1. Mental
13 2. Both physical and mental
186 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1F BLESSED SCORE-GRASP SITUATIONS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: GRASPSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Grasp situations or explanations
.................................................................................
152 0. None
86 0.5. Some
7 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1FR BLESSED REASON FOR SCORE - BDBL1F
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: GRASPRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
11 0. Physical
65 1. Mental
17 2. Both physical and mental
152 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1G BLESSED SCORE-RECALL RECENT EVENTS
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: EVENTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Recall recent events
.................................................................................
117 0. None
114 0.5. Some
14 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1GR BLESSED REASON FOR SCORE - BDBL1G
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: EVENTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
1 0. Physical
122 1. Mental
5 2. Both physical and mental
117 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL1H BLESSED SCORE-DWELL IN THE PAST
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: PASTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Tendency to dwell in the past
.................................................................................
168 0. None
56 0.5. Some
21 1. Severe
7 97. Not assessed/Not asked
==========================================================================================
BDBL1HR BLESSED REASON FOR SCORE - BDBL1H
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: PASTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
1 0. Physical
70 1. Mental
6 2. Both physical and mental
168 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL2EA BLESSED SCORE - EATING
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: EATING
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
233 0. Feeds self without assistance
9 1. Feeds self with minor assistance
2 2. Feeds self with much assistance
1 3. Has to be fed
7 97. Not assessed/Not asked
==========================================================================================
BDBL2EAR BLESSED REASON FOR SCORE - BDBL2EA
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: EATRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
12 0. Physical
1. Mental
2. Both physical and mental
233 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL2DRE BLESSED SCORE - DRESSING
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: DRESSING
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
198 0. Unaided
33 1. Occasionally misplaces buttons, etc., requires minor help
11 2. Wrong sequences, forgets items, requires much assistance
3 3. Unable to dress
7 97. Not assessed/Not asked
==========================================================================================
BDBL2DRR BLESSED REASON FOR SCORE - BDBL2DRE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: DRESSRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
38 0. Physical
3 1. Mental
6 2. Both physical and mental
198 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBL2TO BLESSED SCORE - TOILET
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: TOILET
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
178 0. Clean, cares for self at toilet
40 1. Occasional incontinence, or needs to be reminded
24 2. Frequent incontinence, or needs much assistance
3 3. Little or no control
7 97. Not assessed/Not asked
==========================================================================================
BDBL2TOR BLESSED REASON FOR SCORE - BDBL2TO
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: TOILRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
63 0. Physical
1 1. Mental
3 2. Both physical and mental
178 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
==========================================================================================
BDBLSCOR BLESSED SCALE SCORE
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SCORE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
245 0-12. Total score of all Blessed dementia items
7 97. Not assessed/Not asked
==========================================================================================
BDBLPG2S BLESSED PAGE 2 OF SCALE NOT APPROPRIATE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: PG2CK
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Page 2 of the Blessed Dementia Scale was completed only if the respondent had
advanced dementia. The nurse determined whether to administer this section
based on his/her clinical judgment whether these behaviors were relevant for a
respondent given his/her level of impairment. This variable is a checkpoint
for whether Page 2 was skipped (inapplicable) or not.
.................................................................................
228 1. Page 2 of Blessed not completed
17 5. Page 2 of Blessed completed
7 97. Not assessed/Not asked
==========================================================================================
BDBL31 BLESSED SCORE-LOSS RECOGNITION CAREGIVER
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LOSSREC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Loss of recognition of immediate caregiver
.................................................................................
17 0. None/Normal
1. Occasional
2. Frequent
3. Consistent
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL32 BLESSED SCORE-IMPAIRED AMBULATION
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AMBULAT
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Impaired ambulation (for non-physical reasons)
.................................................................................
16 0. None/Normal
1 1. Occasional
2. Frequent
3. Consistent
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL33 BLESSED SCORE-WANDERING
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: WANDER
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Wandering
.................................................................................
16 0. None/Normal
1 1. Occasional
2. Frequent
3. Consistent
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
99. RF (Refused)
==========================================================================================
BDBL34 BLESSED SCORE-LOSS OF AWARE/COMPR/COMM
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AWARENES
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Overall loss of awareness, comprehension, or communication (underscore which)
.................................................................................
12 0. None/Normal
5 1. Occasional
2. Frequent
3. Consistent
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL35 BLESSED SCORE-SERIOUS BEHAVIORAL PX
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NOISY
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Serious behavioral problem (noisy, angry, combative, etc.)
.................................................................................
15 0. None/Normal
2 1. Occasional
2. Frequent
3. Consistent
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL36 BLESSED SCORE-INABILITY FIND WAY IN HOME
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: OWNHOME
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to find way in own home
.................................................................................
2 1. Yes
14 5. No
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
BDBL37 BLESSED SCORE-INABILITY TO USE TELEPHONE
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: USEPHONE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to telephone (at least one number)
.................................................................................
6 1. Yes
11 5. No
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL38 BLESSED SCORE-MONITOR WHAT/HOW EAT FOOD
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MONFOOD
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Need for monitoring what and how food is eaten (e.g., to prevent eating spoiled
foods, choking on bulky foods)
.................................................................................
4 1. Yes
13 5. No
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL39 BLESSED SCORE-SLEEP DISTURBANCES
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SLEEP
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Sleep disturbances that keep caregiver awake
.................................................................................
2 1. Yes
15 5. No
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL310 BLESSED SCORE-LEFT ALONE ALL DAY/NIGHT
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ALONEALL
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
If necessary, could patient be left alone for entire day and night?
.................................................................................
9 1. Yes
8 5. No
228 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL311 BLESSED SCORE-LEFT ALONE AT NIGHT
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ALONEPM
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Could he or she usually be left alone at night?
.................................................................................
1 1. Yes
9 5. No
235 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBL312 BLESSED SCORE-HOW LONG LEFT ALONE IN DAY
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LONGALON
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For how long could subjects be left alone during day?
.................................................................................
4 0. Not at all
5 1. Less than 2 hours (permitting caregiver to run errands)
1 2. 2-8 hours (permitting caregiver to hold job)
3. More than 8 hours
235 96. Skipped (Not applicable)
7 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDBLCOMM BLESSED DEMENTIA SCALE COMMENTS
Section: BD Level: Respondent Type: Character Width: 100 Decimals: 0
Ref: BLESSCOM
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
==========================================================================================
BDMH1 EVER SEEN DOCTOR FOR MEMORY PROBLEMS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH1
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
The next few questions are about (SUBJECT NAME's) medical history. First, has
(SUBJECT NAME) ever seen a doctor for any of the memory problems we have
discussed? (If no memory problems endorsed, ask if subject has seen a doctor
for any concerns with her/his memory or thinking).
If answer is "No," "Don't Know," or "Refused," then skip the remainder of the
following medical history questions pertaining to memory problem evaluation.
.................................................................................
21 1. Yes
223 5. No (Skip Medical History Items 3-9)
5 97. Not assessed/Not asked
3 98. DK (Don't Know)
==========================================================================================
BDMH3 SPECIALTY OF DOCTOR FOR BDMH1
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH3
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
3 1. Neurologist
3 2. Psychiatrist
12 3. Family Practitioner/Internal Med
2 4. Other (Specify)
226 96. Not applicable
5 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
BDMH4MO MONTH OF EXAM FOR BDMH1
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH4MO
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
3 1. January
2. February
2 3. March
1 4. April
1 5. May
1 6. June
7. July
1 8. August
3 9. September
1 10. October
1 11. November
1 12. December
226 96. Not applicable
5 97. Not assessed/Not asked
6 98. DK (Don't Know)
==========================================================================================
BDMH4YR YEAR OF EXAM FOR BDMH1
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Ref: MH4YR
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
20 2001-2004. Year
226 9996. Not applicable
5 9997. Not assessed/Not asked
1 9998. DK (Don't Know)
==========================================================================================
BDMH5 CAUSE OF MEMORY PROBLEM AS PER DOCTOR
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH5
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What did the doctor say was the cause of the memory trouble?
.................................................................................
7 1. Normal Aging
1 2. AD
2 3. Strokes or TIAS
1 4. Dementia
3 5. Other (Specify)
6. Parkinson's Disease
7. Depression
226 96. Not applicable
5 97. Not assessed/Not asked
7 98. DK (Don't Know)
==========================================================================================
BDMH5SP SPECIFY CAUSE IF OTHER FOR BDMH5
Section: BD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: MH5SPEC
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
==========================================================================================
BDMH6 SEE OTHER SPECIALIST FOR MEMORY PROBLEMS
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH6
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
Did (SUBJECT NAME) ever have an examination with a specialist such as a
neurologist or psychiatrist for memory problems?
This question was asked if the doctor asked about in ADMH1 is not a specialist.
.................................................................................
1 1. Yes
12 5. No
233 96. Not applicable
5 97. Not assessed/Not asked
1 98. DK (Don't Know)
99. RF (Refused)
==========================================================================================
BDMH8 SPECIALTY OF DOCTOR IN BDMH6
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH8
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1. Neurologist
1 2. Psychiatrist
4. Other (Specify)
8. DK (Don't Know)
246 96. Not applicable
5 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDMH8SP SPECIFY SPECIALTY IF OTHER FOR BDMH8
Section: BD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: MH8SPEC
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
==========================================================================================
BDMH8MO MONTH OF SPECIALTY EXAM
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH8MO
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1. January
2. February
3. March
4. April
5. May
6. June
7. July
8. August
1 9. September
10. October
11. November
12. December
246 96. Not applicable
5 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
BDMH8YR YEAR OF SPECIALTY EXAM
Section: BD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Ref: MH8YR
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1 2004-2004. Year
246 9996. Not applicable
5 9997. Not assessed/Not asked
9998. DK (Don't Know)
==========================================================================================
BDMH9 CAUSE OF MEMORY PROB. AS PER SPECIALIST
Section: BD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH9
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What diagnosis was given for the cause of the problems?
.................................................................................
1. Normal Aging
2. AD
3. Strokes or TIAS
1 4. Dementia
5. Other (Specify)
246 96. Not applicable
5 97. Not assessed/Not asked
98. DK (Don't Know)
99. RF (Refused)
==========================================================================================
BDMH9SP SPECIFY CAUSE IF OTHER FOR BDMH9
Section: BD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: MH9SPEC
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
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