==========================================================================================
Section AD: ASSESSMENT DATA PART II: DEMENTIA DIAGNOSES/SUMMARY SCORES - INITIAL VISIT (Respondent)
==========================================================================================
HHID HRS HOUSEHOLD IDENTIFIER
Section: AD Level: Respondent Type: Character Width: 6 Decimals: 0
This variable uniquely identifies an original HRS household across waves.
.................................................................................
856 010059-213468. Household Identification Number
==========================================================================================
PN HRS PERSON NUMBER
Section: AD Level: Respondent Type: Character Width: 3 Decimals: 0
Each HRS respondent has a Person Number, PN, unique within an original
household. In combination, HHID and PN uniquely identify a respondent across
all waves of the study.
.................................................................................
584 010. Person Number
11 011. Person Number
187 020. Person Number
1 021. Person Number
33 030. Person Number
39 040. Person Number
1 041. Person Number
==========================================================================================
ADAMSSID ADAMS SUBJECT IDENTIFIER
Section: AD Level: Respondent Type: Character Width: 5 Decimals: 0
This variable identifies an ADAMS subject in the ADAMS data files.
.................................................................................
856 00021-21311. ADAMS Subject Identification Number
==========================================================================================
ADCCDX1 INITIAL VISIT PRIMARY DX (NO MED RECS)
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
.................................................................................
86 1. Probable AD
142 2. Possible AD
11 3. Probable Vascular Dementia
38 4. Possible Vascular Dementia
2 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
1 8. Normal pressure hydrocephalus
23 10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
2 14. Severe head trauma (with residual)
1 15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
1 18. Probable Lewy Body dementia
19. Post encephalitic dementia
96 20. Mild-ambiguous
21 21. Cognitive impairment secondary to vascular disease
4 22. Mild Cognitive Impairment
8 23. Depression
2 24. Psychiatric Disorder
8 25. Mental Retardation
3 26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
33 28. Stroke
10 29. Other Neurological conditions
52 30. Other Medical conditions
309 31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
==========================================================================================
ADCCDX2 INITIAL VISIT SECONDARY DX (NO MED RECS)
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a secondary diagnosis.
.................................................................................
1. Probable AD
10 2. Possible AD
3. Probable Vascular Dementia
5 4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
1 15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
2 18. Probable Lewy Body dementia
19. Post encephalitic dementia
1 20. Mild-ambiguous
3 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
19 23. Depression
3 24. Psychiatric Disorder
1 25. Mental Retardation
9 26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
21 28. Stroke
8 29. Other Neurological conditions
16 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
756 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
ADCCDX3 INITIAL VISIT TERTIARY DX (NO MED RECS)
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Not all subjects were assigned a tertiary diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
24. Psychiatric Disorder
25. Mental Retardation
1 26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
2 29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
847 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
ADCCMDX1 INITIAL VISIT PRIMARY DX (W/ MED RECS)
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCMDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable.
.................................................................................
71 1. Probable AD
60 2. Possible AD
20 3. Probable Vascular Dementia
17 4. Possible Vascular Dementia
2 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
12 10. Dementia of undetermined etiology
11. Pick's disease
1 13. Frontal lobe dementia
1 14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
14 20. Mild-ambiguous
6 21. Cognitive impairment secondary to vascular disease
1 22. Mild Cognitive Impairment
1 23. Depression
24. Psychiatric Disorder
1 25. Mental Retardation
1 26. Alcohol Abuse (past)
2 27. Alcohol Abuse (current)
17 28. Stroke
2 29. Other Neurological conditions
18 30. Other Medical conditions
30 31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
579 97. No diagnosis assigned based on med record review
==========================================================================================
ADCCMDX2 INITIAL VISIT SECONDARY DX (W/ MED RECS)
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCMDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a secondary
diagnosis.
.................................................................................
1. Probable AD
9 2. Possible AD
3. Probable Vascular Dementia
7 4. Possible Vascular Dementia
1 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
1 17. Hypoperfusion dementia
3 18. Probable Lewy Body dementia
19. Post encephalitic dementia
1 20. Mild-ambiguous
5 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
1 24. Psychiatric Disorder
1 25. Mental Retardation
4 26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
12 28. Stroke
4 29. Other Neurological conditions
2 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
579 97. No diagnosis assigned based on med record review
221 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
ADCCMDX3 INITIAL VISIT TERTIARY DX (W/ MED RECS)
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ACCMDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
Medical records were not sought or obtained for all subjects. If medical
records were not used in making a consensus diagnosis, then the subject was
assigned a value of 97 (No diagnosis assigned based on med record review) for
this variable. In addition, not all subjects were assigned a tertiary
diagnosis.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
2 23. Depression
24. Psychiatric Disorder
25. Mental Retardation
26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
578 97. No diagnosis assigned based on med record review
275 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
ADFDX1 INITIAL VISIT FINAL PRIMARY DIAGNOSIS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AFDX1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the "final" primary research diagnosis following the
initial assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
122 1. Probable AD
107 2. Possible AD
22 3. Probable Vascular Dementia
26 4. Possible Vascular Dementia
2 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
1 8. Normal pressure hydrocephalus
23 10. Dementia of undetermined etiology
11. Pick's disease
1 13. Frontal lobe dementia
2 14. Severe head trauma (with residual)
1 15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
1 18. Probable Lewy Body dementia
19. Post encephalitic dementia
94 20. Mild-ambiguous
20 21. Cognitive impairment secondary to vascular disease
4 22. Mild Cognitive Impairment
8 23. Depression
2 24. Psychiatric Disorder
8 25. Mental Retardation
3 26. Alcohol Abuse (past)
3 27. Alcohol Abuse (current)
34 28. Stroke
10 29. Other Neurological conditions
55 30. Other Medical conditions
307 31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
==========================================================================================
ADFDX2 INITIAL VISIT FINAL SECONDARY DIAGNOSIS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AFDX2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the "final" secondary research diagnosis following the
initial assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
1. Probable AD
12 2. Possible AD
3. Probable Vascular Dementia
8 4. Possible Vascular Dementia
1 5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
1 15. Alcoholic dementia
16. ALS with dementia
1 17. Hypoperfusion dementia
3 18. Probable Lewy Body dementia
19. Post encephalitic dementia
1 20. Mild-ambiguous
5 21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
19 23. Depression
3 24. Psychiatric Disorder
1 25. Mental Retardation
10 26. Alcohol Abuse (past)
1 27. Alcohol Abuse (current)
21 28. Stroke
7 29. Other Neurological conditions
17 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
745 Blank. Subject not assigned a secondary diagnosis
==========================================================================================
ADFDX3 INITIAL VISIT FINAL TERTIARY DIAGNOSIS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AFDX3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CONSENSUS CONFERENCE DEMENTIA RESEARCH DIAGNOSIS
This is recommended as the "final" tertiary research diagnosis following the
initial assessment. This research diagnosis takes the medical record review (if
applicable) into account.
.................................................................................
1. Probable AD
2. Possible AD
3. Probable Vascular Dementia
4. Possible Vascular Dementia
5. Parkinson's
6. Huntington's
7. Progressive Supranuclear Palsy
8. Normal pressure hydrocephalus
10. Dementia of undetermined etiology
11. Pick's disease
13. Frontal lobe dementia
14. Severe head trauma (with residual)
15. Alcoholic dementia
16. ALS with dementia
17. Hypoperfusion dementia
18. Probable Lewy Body dementia
19. Post encephalitic dementia
20. Mild-ambiguous
21. Cognitive impairment secondary to vascular disease
22. Mild Cognitive Impairment
5 23. Depression
24. Psychiatric Disorder
25. Mental Retardation
1 26. Alcohol Abuse (past)
27. Alcohol Abuse (current)
28. Stroke
1 29. Other Neurological conditions
1 30. Other Medical conditions
31. Normal/Non-case
32. Possible Lewy Body dementia
33. CIND, non-specified
848 Blank. Subject not assigned a tertiary diagnosis
==========================================================================================
ADONSET AGE OF ONSET FOR SUBJECT WITH DEMENTIA
Section: AD Level: Respondent Type: Numeric Width: 3 Decimals: 0
Ref: CURRONSET
This variable is the age of onset for dementia and was assigned if a subject was
assigned a diagnosis of dementia based on the initial assessment (in section AD)
or at the follow-up assessment (in section BD). Onset is the age at which we
estimate that the individual met DSM criteria for dementia based on review of
the chronological history of cognitive and functional symptoms. This
information is based
primarily on informant report.
.................................................................................
301 52-105. Age of onset of dementia
555 Blank. Inapplicable or no age assigned
==========================================================================================
ADCDRCP CDR SCALE COMPLETED
Section: AD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: CDRCOMP
Category: INITIAL ASSESSMENT DATA
Measure: CDR - CLINICAL DEMENTIA RATING
Whether the CDR Scale was completed.
The CDR quantifies severity of dementia in several different areas of
functioning. The CDR reflects an indirect evaluation of cognition and
functional performance based on information obtained from both the informant and
subject during the course of the evaluation. The CDR rating was assigned for
all subjects, regardless of dementia status. More information about the CDR and
how scores were assigned can be found in the data description.
.................................................................................
852 1. Yes
4 5. No
==========================================================================================
ADCDRS1 CDR ITEM 1 SCORE, MEMORY
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM1
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
238 0. No Dementia
309 0.5. Mild Impairment
145 1. Mild Dementia
87 2. Moderate Dementia
46 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADCDRS2 CDR ITEM 2 SCORE, ORIENTATION
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM2
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
384 0. No Dementia
188 0.5. Mild Impairment
135 1. Mild Dementia
81 2. Moderate Dementia
37 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADCDRS3 CDR ITEM 3 SCORE, JUDGEMENT
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM3
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
357 0. No Dementia
207 0.5. Mild Impairment
146 1. Mild Dementia
55 2. Moderate Dementia
60 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADCDRS4 CDR ITEM 4 SCORE, COMM AFFAIRS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM4
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
437 0. No Dementia
156 0.5. Mild Impairment
101 1. Mild Dementia
82 2. Moderate Dementia
49 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADCDRS5 CDR ITEM 5 SCORE, HOME/HOBBY
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SUBITEM5
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
444 0. No Dementia
138 0.5. Mild Impairment
107 1. Mild Dementia
68 2. Moderate Dementia
68 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADCDRS6 CDR ITEM 6 SCORE, PERSONAL CARE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SUBITEM6
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
643 0. No Dementia
61 1. Mild Dementia
51 2. Moderate Dementia
70 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADCDRSTG CDR - CALCULATED OVERALL SCORE
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: STAGING
Category: DEMENTIA RATINGS/OUTCOMES
Measure: CDR - CLINICAL DEMENTIA RATING
.................................................................................
228 0. No Dementia
365 0.5. Mild Impairment
108 1. Mild Dementia
66 2. Moderate Dementia
58 3. Severe Dementia
18 4. Profound Dementia
9 5. Terminal Dementia
4 97. Not assessed/Not asked
==========================================================================================
ADHACHCP HACHINSKI SCALE COMPLETED
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HACHCOMP
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Whether the Hachinski Scale was completed.
The Modified Hachinski Scale is designed to assess a number of risk factors for
vascular dementia. This form was only completed if a diagnosis of dementia was
assigned to a subject. More information about this scale and how scores were
assigned can be found in the data description.
.................................................................................
295 1. Yes
561 5. No
==========================================================================================
ADHACH1 HACHINSKI ITEM 1, ABRUPT DEMENTIA ONSET
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ABRUPT
Category: INITIAL ASSESSMENT DATA
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
1. Abrupt onset
.................................................................................
249 0. Absent
46 2. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH2 HACHINSKI ITEM 2, STEPWISE DETERIORATION
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: STEPWISE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Only complete this form if diagnosis = Dementia
Circle each feature as to its presence or absence.
2. Stepwise deterioration
.................................................................................
270 0. Absent
25 1. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH3 HACHINSKI ITEM 3, SOMATIC COMPLAINTS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SOMATIC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Somatic complaints
.................................................................................
293 0. Absent
2 1. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH4 HACHINSKI ITEM 4, EMOTIONAL INCONTINENCE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: E_INCONT
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Emotional incontinence
.................................................................................
290 0. Absent
5 1. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH5 HACHINSKI ITEM 5, HYPERTENSION HISTORY
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HYPERHX
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
History of hypertension
.................................................................................
105 0. Absent
190 1. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH6 HACHINSKI ITEM 6, STROKE/TIA HISTORY
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: STROKEHX
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
History of stroke or TIA
.................................................................................
187 0. Absent
108 2. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH7 HACHINSKI ITEM 7, FOCAL NEUROL SYMPTOMS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: FOCALSX
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Focal neurological symptoms
.................................................................................
217 0. Absent
78 2. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACH8 HACHINSKI ITEM 8, FOCAL NEUROL SIGNS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NEURSIGN
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
Focal neurological signs
.................................................................................
209 0. Absent
86 2. Present
561 97. Not assessed/Not asked
==========================================================================================
ADHACHSC HACHINSKI - CALCULATED SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HSCORE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: HACHINSKI SCALE
.................................................................................
295 0-12. Total score
561 97. Not assessed/Not asked
==========================================================================================
ADDRSCP DSRS - WHETHER COMPLETED
Section: AD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: DRSCOMP
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was completed
The DSRS is an informant-completed multiple-choice questionnaire that assesses
severity of cognitive and functional impairment in domains that are typically
affected by Alzheimer's disease (AD). There are 12 items assessing the
following domains: memory, orientation, judgment, social interactions/ community
affairs, home activities/responsibilities, personal care, speech/language,
recognition of others, feeding, incontinence, mobility/walking, and
informant-perceived stress. More information about this scale and how scores
were assigned can be found in the data description.
.................................................................................
808 1. Yes
48 5. No
==========================================================================================
ADDRSSPN DSRS - DONE IN SPANISH
Section: AD Level: Respondent Type: Numeric Width: 1 Decimals: 0
Ref: DRSSPAN
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Whether the DSRS was conducted in Spanish.
.................................................................................
38 1. Yes
818 5. No
==========================================================================================
ADINFGEN DSRS GENDER OF INFORMANT
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: GENDER
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
201 1. Male
607 2. Female
48 97. Not assessed/Not asked
==========================================================================================
ADDRSREL DSRS INFORMANT RELATIONSHIP TO SUBJECT
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: RELDSRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
284 1. Spouse
306 2. Child
32 3. Sibling
4. Parent
59 5. Friend
6. Guardian
4 7. Neighbor
123 8. Other
48 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADDRSRLS DSRS SPECIFY IF ADDRSREL=OTHER
Section: AD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: RELSPDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
==========================================================================================
ADDRS1 DSRS MEMORY SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MEMDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.
.................................................................................
201 1. Normal
321 2. Occasional forgetfulness of no real significance
98 3. Frequent noticeable forgetfulness, but still has partial
recollection of events
54 4. Moderate memory loss, more marked for recent events, and
severe enough to interfere with everyday activities
24 5. Severe memory loss; only well-learned material retained,
with newly-learned material rapidly lost
71 6. Usually unable to remember simple facts such as the day of
the week, month and/or year, when last meal eaten or name of
next meal
20 7. Unable to evaluate memory because of speech or language
difficulty and/or inability to follow instructions
19 8. Questions about memory not meaningful; makes no attempt to
communicate and is no longer aware of surroundings
48 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADDRS2 DSRS ORIENTATION SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ORIENDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
336 1. Normal
300 2. Some difficulty keeping track of dates and times, but not
severe enough to interfere with everyday activities
75 3. Frequently disoriented in time and sometimes disoriented to
new place
26 4. Almost always disoriented in time and usually disoriented to
place
50 5. Unable to understand or answer questions about time of day
or name of present location
21 6. Is unaware of questions and makes no attempt to respond
48 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADDRS3 DSRS JUDGEMENT SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: JUDGDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
426 1. Normal
103 2. Only questionable impairment in problem solving ability
163 3. Moderate difficulty in handling complex problems, but social
judgment is usually maintained
54 4. Severe impairment in handling problems, social judgment
impaired
62 5. Unable to exercise judgment in either problem solving or
social situations
48 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADDRS4 DSRS SOCIAL INTERACTIONS SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SOCDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
410 1. No alteration in ability to participate in community affairs
146 2. Only mild impairment, of no practical consequence but
clearly different from previous years. Still able to work
(if applicable) but performance not up to previous standards
90 3. Unable to function independently in community activities
although still able to participate to some extent and, to
casual observer, may appear normal. Unable to hold a job
or, if still working, requires constant supervision
63 4. Clearly incapable of independent function outside of the
home. Unable to hold a job but still participates in home
activities with friends. Casual acquaintances are aware of
a problem
99 5. No longer participates in any meaningful way in home-based
social activities involving people other than the primary
caregiver
48 97. Not assessed/Not asked
==========================================================================================
ADDRS5 DSRS HOME ACTIVITIES, RESPONSIBILITIES
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HOMEDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
385 1. Normal
174 2. Some impairment in activities such as money management and
house maintenance, but no effect on ability to shop, cook or
clean. Still watches TV and reads newspaper with interest
and some understanding
92 3. Unable to perform activities related to money management
(bill paying, etc.) or complex household tasks
(maintenance). Some difficulty with shopping, cooking
and/or cleaning. Losing interest in the newspaper and TV
36 4. No longer able to shop, cook or clean without considerable
help and supervision. No longer able to read the newspaper
or watch TV with comprehension
120 5. No longer engages in any purposeful home-based activities,
dependent on others for these tasks
48 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
ADDRS6 DSRS PERSONAL CARE SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: PERSDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
500 1. Normal
107 2. Needs occasional prompting but washes and dresses
independently
45 3. Able to dress and groom self but requires supervision to
avoid embarrassing errors or omissions
58 4. Able to participate in dressing or personal hygiene but
requires constant supervision
97 5. Totally dependent on help for dressing or grooming. Does
not initiate personal care activities
49 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADDRS7 DSRS SPEECH LANGUAGE SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LANGDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
452 1. Normal
201 2. Occasional trouble finding words or other speech errors, but
able to carry on conversations
46 3. Frequently unable to think of words, may make inappropriate
word substitutions or use nonsense expressions. Has
difficulty following complex conversations
44 4. No longer able to hold extended conversations because of
difficulties comprehending others or expressing self. Can
usually answer questions using simple sentences
31 5. Answers questions, but the responses are often
unintelligible or nonsensical. Able to follow only simple
instructions
24 6. Speech usually unintelligible or irrelevant. Unable to
understand or answer questions or to follow verbal
instructions
9 7. No response, no longer attempts to communicate
49 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADDRS8 DSRS RECOGNITION OF OTHERS SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: RECOGDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
472 1. Normal
135 2. Occasionally fails to recognize distant acquaintances or
casual friends
107 3. Always recognizes family and close friends but frequently
fails to recognize others
58 4. Occasionally fails to recognize family members and/or close
friends
24 5. Only occasionally recognizes spouse or caregiver
8 6. No recognition or awareness of the presence of others
49 97. Not assessed/Not asked
3 98. DK (Don't Know)
==========================================================================================
ADDRS9 DSRS FEEDING SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: FEEDDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
615 1. Normal
108 2. May require help cutting food but otherwise able to eat
independently
38 3. Mostly able to eat independently but may require some
assistance. Occasionally uses fingers or wrong utensils
18 4. Requires assistance. Uses fingers more than utensils
28 5. Totally dependent on others for feeding. May have
difficulty swallowing or require feeding tube
48 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
ADDRS10 DSRS INCONTINENCE SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: INCONDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
515 1. Normal
110 2. Loses control of bladder rarely (generally less than one
accident per month)
49 3. Loses control of bladder an average of two or more times a
month
59 4. Frequently loses control of bladder despite help to toilet
(more than once a week)
72 5. Total loss of bladder control
48 97. Not assessed/Not asked
3 98. DK (Don't Know)
==========================================================================================
ADDRS11 DSRS MOBILITY, WALKING SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MOBILDRS
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
(Please circle one item in each category that best describes how your
(RELATIONSHIP OF SUBJECT TO INFORMANT) is doing at the present time. Please
feel free to ask questions if any items are unclear.)
.................................................................................
412 1. Normal
66 2. May occasionally have some difficulty driving or taking
public transportation but fully independent for walking
without supervision
55 3. Able to walk outside without supervision for short distances
but unable to drive or take public transportation
45 4. Able to walk within the home without supervision but cannot
go outside unaccompanied
31 5. Requires supervision within the home but able to walk
without assistance (may use cane or walker)
28 6. Generally confined to a bed or chair. May be able to walk a
few steps with help
16 7. Essentially bedridden. Unable to sit or stand
48 97. Not assessed/Not asked
155 98. DK (Don't Know)
==========================================================================================
ADDRS12 DSRS DEGREE ILLNESS AFFECTS INFORM ABIL
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: RDEGREE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
12. By placing a mark on the line please rate the degree that this illness
affects your ability to carry on a normal life style.
-------------------------------------------------------------------------
1 2 3 4 5 6 7 8 9 10
no some stress highly can no
problem but tolerable stressful longer cope
.................................................................................
807 1-10. Rating
48 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
ADDRSSCR DSRS SCORE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: DRSSCOR
Category: DEMENTIA RATINGS/OUTCOMES
Measure: DEMENTIA SEVERITY RATING SCALE
.................................................................................
==========================================================================================
ADBLCP BLESSED DEMENTIA RATING SCALE COMPLETED
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: BLESSDON
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
The Blessed Dementia Rating Scale - CERAD is a standardized research instrument
that characterizes performance of activities of daily living that are often
affected by dementia. The informant was instructed to rate whether the subject
had no loss, some loss or severe loss of ability in a number of areas of
cognition and everyday activities. For three items assessing activities of
daily living (i.e., eating, dressing, toileting), the informant reported the
level of assistance the subject needed on a three-point scale. For all items,
the informant also noted whether the loss of ability or the need for assistance
in each area was due to Mental (i.e. cognitive) and/or Physical reasons. The
score is weighted based on the severity of the loss. The only items counted in
the score are losses for which the cause is 'Mental' or 'Both' (Mental and
Physical). More information about this scale and how scores were assigned can
be found in the data description.
.................................................................................
844 1. Yes
12 5. No
==========================================================================================
ADBL1A BLESSED SCORE-PERFORM HOUSEHOLD TASKS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: TASKSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Perform household tasks
.................................................................................
352 0. None
230 0.5. Some
262 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1AR REASON FOR BLESSED SCORE - ADBL1A
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: TASKRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
253 0. Physical
98 1. Mental
141 2. Both physical and mental
352 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1B BLESSED SCORE-COPE WITH SMALL SUMS MONEY
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: CASHSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Cope with small sums of money
.................................................................................
620 0. None
77 0.5. Some
147 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1BR BLESSED REASON FOR SCORE - ADBL1B
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: CASHRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
18 0. Physical
172 1. Mental
34 2. Both physical and mental
620 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1C BLESSED SCORE-REMEMBER SHORT LIST ITEMS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: LISTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Remember a short list of items (e.g., shopping list)
.................................................................................
483 0. None
192 0.5. Some
169 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1CR REASON FOR BLESSED SCORE - ADBL1C
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LISTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
2 0. Physical
339 1. Mental
20 2. Both physical and mental
483 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1D BLESSED SCORE-FIND WAY ABOUT INDOORS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: HOMESC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way about indoors (home or other familiar locations)
.................................................................................
675 0. None
89 0.5. Some
80 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1DR REASON FOR BLESSED SCORE - ADBL1D
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: HOMERE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
14 0. Physical
124 1. Mental
31 2. Both physical and mental
675 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1E BLESSED SCORE-FIND WAY FAMILIAR STREETS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: STRTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Find way around familiar streets
.................................................................................
576 0. None
104 0.5. Some
164 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1ER REASON FOR BLESSED SCORE - ADBL1E
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: STRTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
29 0. Physical
200 1. Mental
39 2. Both physical and mental
576 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1F BLESSED SCORE-GRASP SITUATIONS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: GRASPSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Grasp situations or explanations
.................................................................................
534 0. None
220 0.5. Some
90 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1FR REASON FOR BLESSED SCORE - ADBL1F
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: GRASPRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
15 0. Physical
266 1. Mental
29 2. Both physical and mental
534 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1G BLESSED SCORE-RECALL RECENT EVENTS
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: EVENTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Recall recent events
.................................................................................
433 0. None
263 0.5. Some
148 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1GR REASON FOR BLESSED SCORE - ADBL1G
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: EVENTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
381 1. Mental
30 2. Both physical and mental
433 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL1H BLESSED SCORE-DWELL IN THE PAST
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: PASTSC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Memory and performance of everyday activities: rate subject's LOSS of ability to
do the tasks listed below.
Tendency to dwell in the past
.................................................................................
608 0. None
155 0.5. Some
81 1. Severe
12 97. Not assessed/Not asked
==========================================================================================
ADBL1HR REASON FOR BLESSED SCORE - ADBL1H
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: PASTRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
0. Physical
229 1. Mental
7 2. Both physical and mental
608 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL2EA BLESSED SCORE - EATING
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: EATING
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
733 0. Feeds self without assistance
59 1. Feeds self with minor assistance
12 2. Feeds self with much assistance
40 3. Has to be fed
12 97. Not assessed/Not asked
==========================================================================================
ADBL2EAR REASON FOR BLESSED SCORE - ADBL2EA
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: EATRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
35 0. Physical
38 1. Mental
38 2. Both physical and mental
733 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL2DRE BLESSED SCORE - DRESSING
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: DRESSING
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
608 0. Unaided
99 1. Occasionally misplaces buttons, etc., requires minor help
44 2. Wrong sequences, forgets items, requires much assistance
93 3. Unable to dress
12 97. Not assessed/Not asked
==========================================================================================
ADBL2DRR REASON FOR BLESSED SCORE - ADBL2DRE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: DRESSRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
98 0. Physical
74 1. Mental
64 2. Both physical and mental
608 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBL2TO BLESSED SCORE - TOILET
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: TOILET
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For three items assessing activities of daily living (i.e., eating, dressing,
toileting), the informant reported the level of assistance the subject needed on
a three-point scale. For all items, the informant also noted whether the loss of
ability or the need for assistance in each area was due to Mental (i.e.
cognitive) and/or Physical reasons. The score is weighted based on the severity
of the loss. The only items counted in the score are losses for which the cause
is 'Mental' or 'Both' (Mental and Physical).
.................................................................................
543 0. Clean, cares for self at toilet
127 1. Occasional incontinence, or needs to be reminded
94 2. Frequent incontinence, or needs much assistance
80 3. Little or no control
12 97. Not assessed/Not asked
==========================================================================================
ADBL2TOR REASON FOR BLESSED SCORE - ADBL2TO
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: TOILRE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
186 0. Physical
52 1. Mental
63 2. Both physical and mental
543 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
==========================================================================================
ADBLSCOR BLESSED SCALE SCORE
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 1
Ref: SCORE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
844 0-17. Total score of all Blessed dementia items
12 97. Not assessed/Not asked
==========================================================================================
ADBLPG2S BLESSED PAGE 2 OF SCALE NOT APPROPRIATE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: PG2CK
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Page 2 of the Blessed Dementia Scale was completed only if the respondent had
advanced dementia. The nurse determined whether to administer this section
based on his/her clinical judgment whether these behaviors were relevant for a
respondent given his/her level of impairment. This variable is a checkpoint
for whether Page 2 was skipped (inapplicable) or not.
.................................................................................
706 1. Page 2 of Blessed not completed
138 5. Page 2 of Blessed completed
12 97. Not assessed/Not asked
==========================================================================================
ADBL31 BLESSED SCORE-LOSS RECOGNITION CAREGIVER
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LOSSREC
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Loss of recognition of immediate caregiver
.................................................................................
65 0. None/Normal
30 1. Occasional
21 2. Frequent
18 3. Consistent
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
4 98. DK (Don't Know)
==========================================================================================
ADBL32 BLESSED SCORE-IMPAIRED AMBULATION
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AMBULAT
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Impaired ambulation (for non-physical reasons)
.................................................................................
90 0. None/Normal
6 1. Occasional
4 2. Frequent
27 3. Consistent
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
11 98. DK (Don't Know)
==========================================================================================
ADBL33 BLESSED SCORE-WANDERING
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: WANDER
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Wandering
.................................................................................
85 0. None/Normal
20 1. Occasional
12 2. Frequent
12 3. Consistent
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
8 98. DK (Don't Know)
1 99. RF (Refused)
==========================================================================================
ADBL34 BLESSED SCORE-LOSS OF AWARE/COMPR/COMM
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: AWARENES
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Overall loss of awareness, comprehension, or communication (underscore which)
.................................................................................
36 0. None/Normal
36 1. Occasional
32 2. Frequent
34 3. Consistent
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADBL35 BLESSED SCORE-SERIOUS BEHAVIORAL PX
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: NOISY
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Serious behavioral problem (noisy, angry, combative, etc.)
.................................................................................
95 0. None/Normal
23 1. Occasional
12 2. Frequent
6 3. Consistent
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
2 98. DK (Don't Know)
==========================================================================================
ADBL36 BLESSED SCORE-INABILITY FIND WAY IN HOME
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: OWNHOME
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to find way in own home
.................................................................................
71 1. Yes
64 5. No
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
3 98. DK (Don't Know)
==========================================================================================
ADBL37 BLESSED SCORE-INABILITY TO USE TELEPHONE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: USEPHONE
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Inability to telephone (at least one number)
.................................................................................
100 1. Yes
37 5. No
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
ADBL38 BLESSED SCORE-MONITOR WHAT/HOW EAT FOOD
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MONFOOD
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Need for monitoring what and how food is eaten (e.g., to prevent eating spoiled
foods, choking on bulky foods)
.................................................................................
85 1. Yes
52 5. No
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
ADBL39 BLESSED SCORE-SLEEP DISTURBANCES
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: SLEEP
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Sleep disturbances that keep caregiver awake
.................................................................................
31 1. Yes
94 5. No
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
13 98. DK (Don't Know)
==========================================================================================
ADBL310 BLESSED SCORE-LEFT ALONE ALL DAY/NIGHT
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ALONEALL
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
If necessary, could patient be left alone for entire day and night?
.................................................................................
14 1. Yes
123 5. No
706 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
1 98. DK (Don't Know)
==========================================================================================
ADBL311 BLESSED SCORE-LEFT ALONE AT NIGHT
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: ALONEPM
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
Could he or she usually be left alone at night?
.................................................................................
16 1. Yes
112 5. No
714 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
2 98. DK (Don't Know)
==========================================================================================
ADBL312 BLESSED SCORE-HOW LONG LEFT ALONE IN DAY
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: LONGALON
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
For how long could subjects be left alone during day?
.................................................................................
81 0. Not at all
22 1. Less than 2 hours (permitting caregiver to run errands)
18 2. 2-8 hours (permitting caregiver to hold job)
7 3. More than 8 hours
714 96. Skipped (Not applicable)
12 97. Not assessed/Not asked
2 98. DK (Don't Know)
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ADBLCOMM BLESSED DEMENTIA SCALE COMMENTS
Section: AD Level: Respondent Type: Character Width: 100 Decimals: 0
Ref: BLESSCOM
Category: DEMENTIA RATINGS/OUTCOMES
Measure: BLESSED DEMENTIA SCALE
.................................................................................
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ADAPOE APOLIPOPROTEIN E GENOTYPE
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: APOE
Category: BIOMARKER
Measure: APOE
The APOE variable indicates the Apolipoprotein E genotype. The DNA for the
genotypic analysis were collected from the ADAMS participant via buccal sample.
A code of 96 indicates that the ApoE genotype could not be determined from the
buccal samples collected. A few participants refused buccal swab collection of
DNA, though the overall participation rate was 98.7% Valid results were
obtained for 98.4% of participants.
.................................................................................
4 22. e2 / e2
104 23. e2 / e3
24 24. e2 / e4
499 33. e3 / e3
187 34. e3 / e4
24 44. e4 / e4
3 96. Genotype Could Not be Determined from DNA Samples Collected
11 99. Subject Refused DNA Sample Collection
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ADMH1 EVER SEEN DOCTOR FOR MEMORY PROBLEMS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH1
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
The next few questions are about (SUBJECT NAME's) medical history. First, has
(SUBJECT NAME) ever seen a doctor for any of the memory problems we have
discussed? (If no memory problems endorsed, ask if subject has seen a doctor
for any concerns with her/his memory or thinking).
If answer is "No," "Don't Know," or "Refused," then skip the remainder of the
following medical history questions pertaining to memory problem evaluation.
.................................................................................
163 1. Yes
677 5. No (Skip Medical History Items 3-9)
2 97. Not assessed/Not asked
14 98. DK (Don't Know)
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ADMH3 SPECIALTY OF DOCTOR FOR ADMH1
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH3
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
36 1. Neurologist
14 2. Psychiatrist
91 3. Family Practitioner/Internal Med
13 4. Other (Specify)
691 96. Not applicable
2 97. Not assessed/Not asked
9 98. DK (Don't Know)
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ADMH4MO MONTH OF EXAM FOR ADMH1
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH4MO
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
6 1. January
3 2. February
8 3. March
7 4. April
6 5. May
3 6. June
4 7. July
4 8. August
6 9. September
6 10. October
8 11. November
7 12. December
691 96. Not applicable
2 97. Not assessed/Not asked
95 98. DK (Don't Know)
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ADMH4YR YEAR OF EXAM FOR ADMH1
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Ref: MH4YR
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
148 1966-2003. Year
691 9996. Not applicable
2 9997. Not assessed/Not asked
15 9998. DK (Don't Know)
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ADMH5 CAUSE OF MEMORY PROBLEM AS PER DOCTOR
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH5
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What did the doctor say was the cause of the memory trouble?
.................................................................................
5 1. Normal Aging
41 2. AD
25 3. Strokes or TIAS
41 4. Dementia
20 5. Other (Specify)
5 6. Parkinson's Disease
2 7. Depression
691 96. Not applicable
2 97. Not assessed/Not asked
24 98. DK (Don't Know)
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ADMH5SP SPECIFY CAUSE IF OTHER FOR ADMH5
Section: AD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: MH5SPEC
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
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ADMH6 SEE OTHER SPECIALIST FOR MEMORY PROBLEMS
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH6
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
Did (SUBJECT NAME) ever have an examination with a specialist such as a
neurologist or psychiatrist for memory problems?
This question was asked if the doctor asked about in ADMH1 is not a specialist.
.................................................................................
27 1. Yes
66 5. No
745 96. Not applicable
2 97. Not assessed/Not asked
16 98. DK (Don't Know)
99. RF (Refused)
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ADMH8 SPECIALTY OF DOCTOR IN ADMH6
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH8
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
11 1. Neurologist
11 2. Psychiatrist
3 4. Other (Specify)
2 8. DK (Don't Know)
827 96. Not applicable
2 97. Not assessed/Not asked
98. DK (Don't Know)
==========================================================================================
ADMH8SP SPECIFY SPECIALTY IF OTHER FOR ADMH8
Section: AD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: MH8SPEC
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
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ADMH8MO MONTH OF SPECIALTY EXAM
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH8MO
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
1 1. January
1 2. February
2 3. March
4. April
1 5. May
1 6. June
7. July
1 8. August
9. September
2 10. October
1 11. November
12. December
827 96. Not applicable
2 97. Not assessed/Not asked
17 98. DK (Don't Know)
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ADMH8YR YEAR OF SPECIALTY EXAM
Section: AD Level: Respondent Type: Numeric Width: 4 Decimals: 0
Ref: MH8YR
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
21 1966-2003. Year
827 9996. Not applicable
2 9997. Not assessed/Not asked
6 9998. DK (Don't Know)
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ADMH9 CAUSE OF MEMORY PROB. AS PER SPECIALIST
Section: AD Level: Respondent Type: Numeric Width: 2 Decimals: 0
Ref: MH9
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
What diagnosis was given for the cause of the problems?
.................................................................................
1. Normal Aging
11 2. AD
3 3. Strokes or TIAS
8 4. Dementia
2 5. Other (Specify)
1 6. Parkinson's Disease
825 96. Not applicable
2 97. Not assessed/Not asked
4 98. DK (Don't Know)
99. RF (Refused)
==========================================================================================
ADMH9SP SPECIFY CAUSE IF OTHER FOR ADMH9
Section: AD Level: Respondent Type: Character Width: 50 Decimals: 0
Ref: MH9SPEC
Category: MEDICAL HISTORY
Measure: EVAL FOR MEMORY PROBLEM
.................................................................................
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