HHID HOUSEHOLD IDENTIFIER
Section: MD Level: Respondent CAI Reference: Q9001
Type: Character Width: 6 Decimals: 0
................................................................................
775 200000-209999. HOUSEHOLD IDENTIFICATION NUMBER
PN RESPONDENT PERSON NUMBER
Section: MD Level: Respondent CAI Reference: Q9002
Type: Character Width: 3 Decimals: 0
User Note: The range 010-040 is reserved for respondent person numbers.
Respondent person numbers ending in zero are generally original sample
members, while respondent person numbers ending in one are generally new
spouses added after the original sample.
................................................................................
607 010. RESPONDENT PERSON NUMBER
168 020. RESPONDENT PERSON NUMBER
NSUBHH 1995 SUB-HOUSEHOLD IDENTIFIER
Section: MD Level: Respondent CAI Reference: Q9003
Type: Character Width: 1 Decimals: 0
................................................................................
754 3. Deceased respondent household
21 4. 2ND Deceased respondent household
BSUBHH 1993 SUB-HOUSEHOLD IDENTIFIER
Section: MD Level: Respondent CAI Reference: Q9004
Type: Character Width: 1 Decimals: 0
................................................................................
775 0. Original Sample Household - No Split From Divorce or Separation
of Spouses or Partners
NPN_SP SPOUSE / PARTNER PERSON NUMBER
Section: MD Level: Respondent CAI Reference: Q9005
Type: Character Width: 3 Decimals: 0
User Note: New Spouses of deceased respondents are not considered
respondents, thus are not assigned a person number.
................................................................................
163 010. Person Number
9 011. Person Number
216 020. Person Number
387 Blank. No Spouse
N5421 MODULE START TIME
Section: MD Level: Respondent CAI Reference: Q5421
Type: Numeric Width: 5 Decimals: 0
................................................................................
772 0-13200. MODULE START TIME
3 Blank. INAP
N5422 MX-0.INTRO
Section: MD Level: Respondent CAI Reference: Q5422
Type: Character Width: 1 Decimals: 0
MX-0.
Now we wish to ask some questions about healthcare decisions
toward the end of [Q371-R FIRST NAME]'s life.
User note: This preamble variable has been included in this data set in
order to document questionnaire flow; all data values are blanks.
................................................................................
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5423 MX-1.R PROVIDE WRITTEN INSTRUCTIONS
Section: MD Level: Respondent CAI Reference: Q5423
Type: Numeric Width: 1 Decimals: 0
MX-1.
Did
[Q371-R FIRST NAME] provide written instructions about the
treatment or care (he/she) wanted to receive during
the final days of (his/her) life?
IWER: EMPHASIZE THE PHRASE WRITTEN INSTRUCTIONS
................................................................................
208 1. YES
371 5. NO
4 8. DK
9. RF
192 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5424 MX-1a.MONTH WRITTEN
Section: MD Level: Respondent CAI Reference: Q5424
Type: Numeric Width: 2 Decimals: 0
MX-1a.
About when were these written instructions dated (approximately)?
MONTH:
YEAR:
................................................................................
35 1. JAN
12 2. FEB
11 3. MAR
5 4. APR
8 5. MAY
14 6. JUN
9 7. JUL
17 8. AUG
10 9. SEP
14 10. OCT
10 11. NOV
36 12. DEC
27 98. DK
99. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5425 MX-1a2.YEAR WRITTEN
Section: MD Level: Respondent CAI Reference: Q5425
Type: Numeric Width: 4 Decimals: 0
................................................................................
196 1900-1996. Range of Values
12 9998. DK
9999. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND
[Q235:CS2mx] IS (1 OR 2 OR 3); [Q218:CS1a] IS (NE 2)
AND [Q557:CS2-PROXY TYPE 1] IS (NE 1-10); [Q5423:MX-
1] IS (NE 1) Or Partial Interview
N5430 MX-1b1.INST PROLONG LIFE
Section: MD Level: Respondent CAI Reference: Q5430
Type: Numeric Width: 1 Decimals: 0
MX-1b1.
Did these instructions express a desire to receive all
care possible under any circumstances in order to prolong life?
................................................................................
4 1. YES
203 5. NO
1 8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5431 MX-1b2.LIMIT CARE
Section: MD Level: Respondent CAI Reference: Q5431
Type: Numeric Width: 1 Decimals: 0
MX-1b2.
Did these instructions express a desire to limit care
in certain situations?
................................................................................
196 1. YES
10 5. NO
2 8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5432 MX-1b3.TREATMENT WITHHELD
Section: MD Level: Respondent CAI Reference: Q5432
Type: Numeric Width: 1 Decimals: 0
MX-1b3.
Did these instructions express a desire to have
any treatment withheld?
................................................................................
171 1. YES
35 5. NO
2 8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5433 MX-1b4.KEEP COMFORTABLE
Section: MD Level: Respondent CAI Reference: Q5433
Type: Numeric Width: 1 Decimals: 0
MX-1b4.
(Did these instructions express a desire to)
keep (him/her) comfortable and pain free but to
forego extensive measures to prolong life?
................................................................................
188 1. YES
18 5. NO
2 8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5434 MX-1c.APPLY TO ACTUAL SITU
Section: MD Level: Respondent CAI Reference: Q5434
Type: Numeric Width: 1 Decimals: 0
MX-1c.
Were these instructions applicable to the actual situation?
................................................................................
177 1. YES
30 5. NO
1 8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5435 MX-1d.CONSULTED INSTRUCTIONS
Section: MD Level: Respondent CAI Reference: Q5435
Type: Numeric Width: 1 Decimals: 0
MX-1d.
Were you consulted about whether these instructions
should be followed?
................................................................................
145 1. YES
62 5. NO
1 8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5436 MX-1e.OTHERS CONSULTED
Section: MD Level: Respondent CAI Reference: Q5436
Type: Numeric Width: 1 Decimals: 0
MX-1e.
Were any (other) family members or other persons consulted?
................................................................................
111 1. YES
97 5. NO
8. DK
9. RF
567 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1) Or Partial Interview
N5437M1 MX-1f.WHO WAS THIS
Section: MD Level: Respondent CAI Reference: Q5437
Type: Numeric Width: 2 Decimals: 0
MX-1f.
Who was this?
CHECK ALL THAT APPLY.
Anyone else?
User Note: Up to eleven mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2 2. NON-SPOUSE PROXY RESPONDENT
10 3. SPOUSE
82 4. CHILD/CHILD-IN-LAW/GRANDCHILD
10 5. OTHER RELATIVE
2 6. FRIEND
3 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
2 11. OTHER (SPECIFY)
98. DK
99. RF
664 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5436:MX-1e] IS (NE 1)
Or Partial Interview
N5437M2 MX-1f.WHO WAS THIS
Section: MD Level: Respondent CAI Reference: Q5437
Type: Numeric Width: 2 Decimals: 0
MX-1f.
Who was this?
CHECK ALL THAT APPLY.
Anyone else?
User Note: Up to eleven mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
2 3. SPOUSE
11 4. CHILD/CHILD-IN-LAW/GRANDCHILD
1 5. OTHER RELATIVE
6. FRIEND
7 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
2 9. ATTORNEY
10. SOCIAL WORKER
1 11. OTHER (SPECIFY)
98. DK
99. RF
751 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5436:MX-1e] IS (NE 1)
Or Partial Interview
N5437M3 MX-1f.WHO WAS THIS
Section: MD Level: Respondent CAI Reference: Q5437
Type: Numeric Width: 2 Decimals: 0
MX-1f.
Who was this?
CHECK ALL THAT APPLY.
Anyone else?
User Note: Up to eleven mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
3 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
1 10. SOCIAL WORKER
1 11. OTHER (SPECIFY)
98. DK
99. RF
770 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5436:MX-1e] IS (NE 1)
Or Partial Interview
N5437M4 MX-1f.WHO WAS THIS
Section: MD Level: Respondent CAI Reference: Q5437
Type: Numeric Width: 2 Decimals: 0
MX-1f.
Who was this?
CHECK ALL THAT APPLY.
Anyone else?
User Note: Up to eleven mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
1 9. ATTORNEY
10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
774 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5436:MX-1e] IS (NE 1)
Or Partial Interview
N5437M5 MX-1f.WHO WAS THIS
Section: MD Level: Respondent CAI Reference: Q5437
Type: Numeric Width: 2 Decimals: 0
MX-1f.
Who was this?
CHECK ALL THAT APPLY.
Anyone else?
User Note: Up to eleven mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5436:MX-1e] IS (NE 1)
Or Partial Interview
N5438M1 MX-1g.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5438
Type: Character Width: 3 Decimals: 0
MX-1g.
Which child was that?
CHOOSE ALL THAT APPLY
User Note: Up to nineteen mentions were allowed, maximum used was two.
................................................................................
4 037. DECEASED CHILD
37 038. ALL CHILDREN
52 041-995. Other Person Number
998. DK
999. RF
682 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5437:MX-1f] IS (NE 4);
Or Partial Interview
N5438M2 MX-1g.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5438
Type: Character Width: 3 Decimals: 0
MX-1g.
Which child was that?
CHOOSE ALL THAT APPLY
User Note: Up to nineteen mentions were allowed, maximum used was two.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
9 041-995. Other Person Number
998. DK
999. RF
766 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5437:MX-1f] IS (NE 4);
Or Partial Interview
N5438M3 MX-1g.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5438
Type: Character Width: 3 Decimals: 0
MX-1g.
Which child was that?
CHOOSE ALL THAT APPLY
User Note: Up to nineteen mentions were allowed, maximum used was two.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
041-995. Other Person Number
998. DK
999. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5437:MX-1f] IS (NE 4);
Or Partial Interview
N5440 MX-1h.PROBLEMS WITH WRITTEN
Section: MD Level: Respondent CAI Reference: Q5440
Type: Numeric Width: 1 Decimals: 0
MX-1h.
Did any problems come up in trying to follow
these written instructions?
................................................................................
8 1. YES
74 5. NO
8. DK
9. RF
693 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5437:MX-1f] IS (NE 4);
[Q5434:MX-1c] IS (NE 1) Or Partial Interview
N5441 MX-1j.PHYSICIAL FOLLOW WRITTEN
Section: MD Level: Respondent CAI Reference: Q5441
Type: Numeric Width: 1 Decimals: 0
MX-1j.
Did the physician or any other health care worker
have problems following the written instructions?
................................................................................
4 1. YES
4 5. NO
8. DK
9. RF
767 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5423:MX-1] IS (NE 1); [Q5434:MX-1c] IS (NE 1);
[Q5440:MX-1h] IS (NE 1) Or Partial Interview
N5445 MX-2.MAKE LEGAL ARRANGEMENTS
Section: MD Level: Respondent CAI Reference: Q5445
Type: Numeric Width: 1 Decimals: 0
MX-2.
Did
[Q371-R FIRST NAME] (also) make any legal arrangements
for a specific person or persons to make decisions about
(his/her) care or medical treatment if (he/she) could not
make those decisions (him/her)self? This is sometimes called
a Durable Power of Attorney for Health Care.
................................................................................
191 1. YES
383 5. NO
8 8. DK
1 9. RF
192 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5446M1 MX-2a.WHO AUTHORITY
Section: MD Level: Respondent CAI Reference: Q5446
Type: Numeric Width: 2 Decimals: 0
MX-2a.
Who had that authority?
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
1. DECEASED R
15 2. NON-SPOUSE PROXY RESPONDENT
55 3. SPOUSE
96 4. CHILD/CHILD-IN-LAW/GRANDCHILD
19 5. OTHER RELATIVE
6. FRIEND
1 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
3 9. ATTORNEY
10. SOCIAL WORKER
2 11. OTHER (SPECIFY)
98. DK
99. RF
584 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1) Or Partial Interview
N5446M2 MX-2a.WHO AUTHORITY
Section: MD Level: Respondent CAI Reference: Q5446
Type: Numeric Width: 2 Decimals: 0
MX-2a.
Who had that authority?
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
10 4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
1 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
764 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1) Or Partial Interview
N5446M3 MX-2a.WHO AUTHORITY
Section: MD Level: Respondent CAI Reference: Q5446
Type: Numeric Width: 2 Decimals: 0
MX-2a.
Who had that authority?
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1) Or Partial Interview
N5447M1 MX-2b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5447
Type: Character Width: 3 Decimals: 0
MX-2b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
2 037. DECEASED CHILD
10 038. ALL CHILDREN
91 041-995. Other Person Number
998. DK
999. RF
672 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1); [Q5446:MX-2a] IS (NE 4);
Or Partial Interview
N5447M2 MX-2b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5447
Type: Character Width: 3 Decimals: 0
MX-2b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
037. DECEASED CHILD
1 038. ALL CHILDREN
3 041-995. Other Person Number
998. DK
999. RF
771 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1); [Q5446:MX-2a] IS (NE 4);
Or Partial Interview
N5447M3 MX-2b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5447
Type: Character Width: 3 Decimals: 0
MX-2b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
041-995. Other Person Number
998. DK
999. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1); [Q5446:MX-2a] IS (NE 4);
Or Partial Interview
N5449 MX-2c.DURABLE P OF ATTORNEY
Section: MD Level: Respondent CAI Reference: Q5449
Type: Numeric Width: 2 Decimals: 0
MX-2c.
When was the Durable Power of Attorney for Health Care
made (approximately)?
MONTH:
YEAR:
................................................................................
43 1. JAN
10 2. FEB
14 3. MAR
4 4. APR
4 5. MAY
15 6. JUN
8 7. JUL
12 8. AUG
12 9. SEP
15 10. OCT
6 11. NOV
28 12. DEC
20 98. DK
99. RF
584 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5445:MX-2] IS (NE 1) Or Partial Interview
N5450 MX-2c2.YEAR WRITTEN
Section: MD Level: Respondent CAI Reference: Q5450
Type: Numeric Width: 4 Decimals: 0
................................................................................
181 1900-1996. Range of Values
10 9998. DK
9999. RF
584 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND
[Q235:CS2mx] IS (1 OR 2 OR 3); [Q218:CS1a] IS (NE 2)
AND [Q557:CS2-PROXY TYPE 1] IS (NE 1-10); [Q5445:MX-
2] IS (NE 1) Or Partial Interview
N5456 MX-3.DISCUSS TREATMENT
Section: MD Level: Respondent CAI Reference: Q5456
Type: Numeric Width: 1 Decimals: 0
MX-3.
Did
[Q371-R FIRST NAME] ever discuss with you or anyone else
the treatment or care (he/she) wanted to receive in the
final days of (his/her) life?
................................................................................
255 1. YES
326 5. NO
2 8. DK
9. RF
192 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5457M1 MX-3a.WHO WAS THAT
Section: MD Level: Respondent CAI Reference: Q5457
Type: Numeric Width: 2 Decimals: 0
MX-3a.
Who was that?
User Note: Up to ten mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
28 2. NON-SPOUSE PROXY RESPONDENT
76 3. SPOUSE
130 4. CHILD/CHILD-IN-LAW/GRANDCHILD
16 5. OTHER RELATIVE
6. FRIEND
4 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
1 11. OTHER (SPECIFY)
98. DK
99. RF
520 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1) Or Partial Interview
N5457M2 MX-3a.WHO WAS THAT
Section: MD Level: Respondent CAI Reference: Q5457
Type: Numeric Width: 2 Decimals: 0
MX-3a.
Who was that?
User Note: Up to ten mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
4 3. SPOUSE
21 4. CHILD/CHILD-IN-LAW/GRANDCHILD
15 5. OTHER RELATIVE
1 6. FRIEND
22 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
2 9. ATTORNEY
1 10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
709 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1) Or Partial Interview
N5457M3 MX-3a.WHO WAS THAT
Section: MD Level: Respondent CAI Reference: Q5457
Type: Numeric Width: 2 Decimals: 0
MX-3a.
Who was that?
User Note: Up to ten mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
1 2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
1 4. CHILD/CHILD-IN-LAW/GRANDCHILD
2 5. OTHER RELATIVE
1 6. FRIEND
6 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
3 9. ATTORNEY
10. SOCIAL WORKER
2 11. OTHER (SPECIFY)
98. DK
99. RF
759 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1) Or Partial Interview
N5457M4 MX-3a.WHO WAS THAT
Section: MD Level: Respondent CAI Reference: Q5457
Type: Numeric Width: 2 Decimals: 0
MX-3a.
Who was that?
User Note: Up to ten mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
2 6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
1 8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
1 11. OTHER (SPECIFY)
98. DK
99. RF
771 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1) Or Partial Interview
N5457M5 MX-3a.WHO WAS THAT
Section: MD Level: Respondent CAI Reference: Q5457
Type: Numeric Width: 2 Decimals: 0
MX-3a.
Who was that?
User Note: Up to ten mentions were allowed, maximum used was four.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1) Or Partial Interview
N5458M1 MX-3b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5458
Type: Character Width: 3 Decimals: 0
MX-3b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
1 037. DECEASED CHILD
43 038. ALL CHILDREN
106 041-995. Other Person Number
998. DK
999. RF
625 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1); [Q5457:MX-3a] IS (NE 4);
Or Partial Interview
N5458M2 MX-3b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5458
Type: Character Width: 3 Decimals: 0
MX-3b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
8 041-995. Other Person Number
998. DK
999. RF
767 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1); [Q5457:MX-3a] IS (NE 4);
Or Partial Interview
N5458M3 MX-3b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5458
Type: Character Width: 3 Decimals: 0
MX-3b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
1 041-995. Other Person Number
998. DK
999. RF
774 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1); [Q5457:MX-3a] IS (NE 4);
Or Partial Interview
N5458M4 MX-3b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5458
Type: Character Width: 3 Decimals: 0
MX-3b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
041-995. Other Person Number
998. DK
999. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5456:MX-3] IS (NE 1); [Q5457:MX-3a] IS (NE 4);
Or Partial Interview
N5463M1 MX-4.WHO MADE DECISIONS
Section: MD Level: Respondent CAI Reference: Q5463
Type: Numeric Width: 2 Decimals: 0
MX-4.
Who was actually involved in making decisions about
the care and treatment of
[Q371-R FIRST NAME] during the final days
of (his/her) life?
(Who else participated?)
User Note: Up to eleven mentions were allowed, maximum used was five.
................................................................................
85 1. DECEASED R
57 2. NON-SPOUSE PROXY RESPONDENT
157 3. SPOUSE
212 4. CHILD/CHILD-IN-LAW/GRANDCHILD
27 5. OTHER RELATIVE
1 6. FRIEND
36 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
1 8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
2 9. ATTORNEY
10. SOCIAL WORKER
4 11. OTHER (SPECIFY)
1 98. DK
99. RF
192 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5463M2 MX-4.WHO MADE DECISIONS
Section: MD Level: Respondent CAI Reference: Q5463
Type: Numeric Width: 2 Decimals: 0
MX-4.
Who was actually involved in making decisions about
the care and treatment of
[Q371-R FIRST NAME] during the final days
of (his/her) life?
(Who else participated?)
User Note: Up to eleven mentions were allowed, maximum used was five.
................................................................................
9 1. DECEASED R
9 2. NON-SPOUSE PROXY RESPONDENT
24 3. SPOUSE
92 4. CHILD/CHILD-IN-LAW/GRANDCHILD
16 5. OTHER RELATIVE
6. FRIEND
46 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
4 11. OTHER (SPECIFY)
98. DK
99. RF
575 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5463M3 MX-4.WHO MADE DECISIONS
Section: MD Level: Respondent CAI Reference: Q5463
Type: Numeric Width: 2 Decimals: 0
MX-4.
Who was actually involved in making decisions about
the care and treatment of
[Q371-R FIRST NAME] during the final days
of (his/her) life?
(Who else participated?)
User Note: Up to eleven mentions were allowed, maximum used was five.
................................................................................
4 1. DECEASED R
1 2. NON-SPOUSE PROXY RESPONDENT
3 3. SPOUSE
14 4. CHILD/CHILD-IN-LAW/GRANDCHILD
4 5. OTHER RELATIVE
6. FRIEND
19 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
2 10. SOCIAL WORKER
1 11. OTHER (SPECIFY)
98. DK
99. RF
727 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5463M4 MX-4.WHO MADE DECISIONS
Section: MD Level: Respondent CAI Reference: Q5463
Type: Numeric Width: 2 Decimals: 0
MX-4.
Who was actually involved in making decisions about
the care and treatment of
[Q371-R FIRST NAME] during the final days
of (his/her) life?
(Who else participated?)
User Note: Up to eleven mentions were allowed, maximum used was five.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
1 4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
1 10. SOCIAL WORKER
2 11. OTHER (SPECIFY)
98. DK
99. RF
771 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5463M5 MX-4.WHO MADE DECISIONS
Section: MD Level: Respondent CAI Reference: Q5463
Type: Numeric Width: 2 Decimals: 0
MX-4.
Who was actually involved in making decisions about
the care and treatment of
[Q371-R FIRST NAME] during the final days
of (his/her) life?
(Who else participated?)
User Note: Up to eleven mentions were allowed, maximum used was five.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
1 11. OTHER (SPECIFY)
98. DK
99. RF
774 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5463M6 MX-4.WHO MADE DECISIONS
Section: MD Level: Respondent CAI Reference: Q5463
Type: Numeric Width: 2 Decimals: 0
MX-4.
Who was actually involved in making decisions about
the care and treatment of
[Q371-R FIRST NAME] during the final days
of (his/her) life?
(Who else participated?)
User Note: Up to eleven mentions were allowed, maximum used was five.
................................................................................
1. DECEASED R
2. NON-SPOUSE PROXY RESPONDENT
3. SPOUSE
4. CHILD/CHILD-IN-LAW/GRANDCHILD
5. OTHER RELATIVE
6. FRIEND
7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
9. ATTORNEY
10. SOCIAL WORKER
11. OTHER (SPECIFY)
98. DK
99. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5464M1 MX-4a.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5464
Type: Character Width: 3 Decimals: 0
MX-4a.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
6 037. DECEASED CHILD
82 038. ALL CHILDREN
200 041-995. Other Person Number
998. DK
999. RF
487 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5463:MX-4] IS (1); [Q5463:MX-4] IS (NE 4); Or
Partial Interview
N5464M2 MX-4a.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5464
Type: Character Width: 3 Decimals: 0
MX-4a.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
037. DECEASED CHILD
2 038. ALL CHILDREN
22 041-995. Other Person Number
998. DK
999. RF
751 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5463:MX-4] IS (1); [Q5463:MX-4] IS (NE 4); Or
Partial Interview
N5464M3 MX-4a.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5464
Type: Character Width: 3 Decimals: 0
MX-4a.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
3 041-995. Other Person Number
998. DK
999. RF
772 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5463:MX-4] IS (1); [Q5463:MX-4] IS (NE 4); Or
Partial Interview
N5464M4 MX-4a.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5464
Type: Character Width: 3 Decimals: 0
MX-4a.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was three.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
041-995. Other Person Number
998. DK
999. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5463:MX-4] IS (1); [Q5463:MX-4] IS (NE 4); Or
Partial Interview
N5466 MX-4b.R ABLE MEDICAL DECIDE
Section: MD Level: Respondent CAI Reference: Q5466
Type: Numeric Width: 1 Decimals: 0
MX-4b.
Was
[Q371-R FIRST NAME] able to participate in decisions
about (his/her) medical care during the final days
of (his/her) life?
................................................................................
177 1. YES
305 5. NO
3 8. DK
9. RF
290 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5463:MX-4] IS (1); [Q5463:MX-4] IS (1) Or
Partial Interview
N5467 MX-4c.HOW LONG R DECIDE BEFORE DYING
Section: MD Level: Respondent CAI Reference: Q5467
Type: Numeric Width: 2 Decimals: 0
MX-4c.
For about how long before
[Q371-R FIRST NAME] died was
(he/she) unable to participate in decisions about (his/her)
medical care?
# MONTHS:
# DAYS:
# YEARS:
................................................................................
126 0-96. Range of Values
98. DK
99. RF
649 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND
[Q235:CS2mx] IS (1 OR 2 OR 3); [Q218:CS1a] IS (NE 2)
AND [Q557:CS2-PROXY TYPE 1] IS (NE 1-10); [Q5463:MX-
4] IS (1); [Q5466:MX-4b] IS (NE 5) Or Partial
Interview
N5468 MX-4c1.DAYS AGO
Section: MD Level: Respondent CAI Reference: Q5468
Type: Numeric Width: 3 Decimals: 0
................................................................................
121 0-100. Range of Values
654 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND
[Q235:CS2mx] IS (1 OR 2 OR 3); [Q218:CS1a] IS (NE 2)
AND [Q557:CS2-PROXY TYPE 1] IS (NE 1-10); [Q5463:MX-
4] IS (1); [Q5466:MX-4b] IS (NE 5); [Q5467:MX-4c] IS
(1-96) Or Partial Interview
N5469 MX-4c2.YEARS AGO
Section: MD Level: Respondent CAI Reference: Q5469
Type: Numeric Width: 3 Decimals: 0
................................................................................
64 1-100. Range of Values
711 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND
[Q235:CS2mx] IS (1 OR 2 OR 3); [Q218:CS1a] IS (NE 2)
AND [Q557:CS2-PROXY TYPE 1] IS (NE 1-10); [Q5463:MX-
4] IS (1); [Q5466:MX-4b] IS (NE 5); [Q5467:MX-4c] IS
(1-96); [Q5468:MX-4c1] IS (1-100) Or Partial
Interview
ASSIGNMENT STATEMENTS
* if [Q0] IS (1) AND [Q5466:MX-4b] IS (NE 1) then [N5474.MX-5.MAIN DECISION
MAKER] = 5463U(111)=
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
N5474 MX-5.MAIN DECISION MAKER
Section: MD Level: Respondent CAI Reference: Q5474
Type: Numeric Width: 2 Decimals: 0
MX-5.
Who was the main decision-maker?
................................................................................
104 1. DECEASED R
27 2. NON-SPOUSE PROXY RESPONDENT
85 3. SPOUSE
82 4. CHILD/CHILD-IN-LAW/GRANDCHILD
6 5. OTHER RELATIVE
6. FRIEND
16 7. PHYSICIAN/HEALTHCARE PROFESSIONAL
8. MINISTER/RABBI/PRIEST/RELIGIOUS ADVISOR
1 9. ATTORNEY
1 10. SOCIAL WORKER
6 11. OTHER (SPECIFY)
2 98. DK
1 99. RF
444 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10) Or Partial Interview
N5475M1 MX-5b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5475
Type: Character Width: 3 Decimals: 0
MX-5b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
1 037. DECEASED CHILD
12 038. ALL CHILDREN
68 041-995. Other Person Number
998. DK
999. RF
694 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5474:MX-5] IS (NE 4); Or Partial Interview
N5475M2 MX-5b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5475
Type: Character Width: 3 Decimals: 0
MX-5b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
1 041-995. Other Person Number
998. DK
999. RF
774 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5474:MX-5] IS (NE 4); Or Partial Interview
N5475M3 MX-5b.WHICH CHILD-1
Section: MD Level: Respondent CAI Reference: Q5475
Type: Character Width: 3 Decimals: 0
MX-5b.
Which child is that?
CHOOSE ALL THAT APPLY
User Note: Up to ten mentions were allowed, maximum used was two.
................................................................................
037. DECEASED CHILD
038. ALL CHILDREN
041-995. Other Person Number
998. DK
999. RF
775 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q5474:MX-5] IS (NE 4); Or Partial Interview
ASSIGNMENT STATEMENTS
* Jump from N5474 when [Q0] IS (1) AND [Q5466:MX-4b] IS (NE 1)
- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -
N5477 MX-6a.UNCONDITION PROLONG
Section: MD Level: Respondent CAI Reference: Q5477
Type: Numeric Width: 1 Decimals: 0
MX-6a.
Did the final decision involve a desire to give all
care possible unconditionally in order to prolong life?
................................................................................
90 1. YES
347 5. NO
5 8. DK
1 9. RF
332 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2) Or Partial Interview
N5478 MX-6b.LIMIT CARE CERTAIN COND
Section: MD Level: Respondent CAI Reference: Q5478
Type: Numeric Width: 1 Decimals: 0
MX-6b.
Did the final decision involve limiting care in
certain situations?
................................................................................
252 1. YES
177 5. NO
14 8. DK
9. RF
332 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2) Or Partial Interview
N5479 MX-6c.LIMIT CARE WITHHOLD TREATMENT
Section: MD Level: Respondent CAI Reference: Q5479
Type: Numeric Width: 1 Decimals: 0
MX-6c.
Did the final decision involve withholding any treatment?
................................................................................
180 1. YES
257 5. NO
6 8. DK
9. RF
332 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2) Or Partial Interview
N5480 MX-6d.LIMIT CARE KEEP COMFORTABLE
Section: MD Level: Respondent CAI Reference: Q5480
Type: Numeric Width: 1 Decimals: 0
MX-6d.
Did the final decision rest largely on keeping
[Q371-R FIRST NAME]
comfortable and pain free without taking extensive
measures to prolong life?
................................................................................
385 1. YES
52 5. NO
6 8. DK
9. RF
332 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2) Or Partial Interview
N5484 MX-7.REFUSED CARE TREATMENT
Section: MD Level: Respondent CAI Reference: Q5484
Type: Numeric Width: 1 Decimals: 0
MX-7.
Did any doctor(s) recommend any care or treatment that
the family or other decision-maker(s) ultimately refused?
................................................................................
43 1. YES
394 5. NO
6 8. DK
9. RF
332 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2) Or Partial Interview
N5485 MX-7a.RECEIVE TREATMENT ANYWAY
Section: MD Level: Respondent CAI Reference: Q5485
Type: Numeric Width: 1 Decimals: 0
MX-7a.
Did
[Q371-R FIRST NAME] receive this treatment anyway?
................................................................................
7 1. YES
36 5. NO
8. DK
9. RF
732 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2); [Q5484:MX-7] IS (NE 1) Or
Partial Interview
N5486 MX-8.COST ENTER DECISION
Section: MD Level: Respondent CAI Reference: Q5486
Type: Numeric Width: 1 Decimals: 0
MX-8.
Did cost enter into the decisions about what care or
treatment (he/she) would receive in the final days
of (his/her) life?
................................................................................
4 1. YES
153 5. NO
1 8. DK
9. RF
617 Blank. INAP(inapplicable): [Q233:CS2jx] IS (2) AND [Q235:CS2mx] IS (1
OR 2 OR 3); [Q218:CS1a] IS (NE 2) AND [Q557:CS2-PROXY TYPE 1]
IS (NE 1-10); [Q233:CS2jx] IS (2); [Q5435:MX-1d] IS (NE 1) AND
[Q5446:MX-2a] IS (NE 2) AND [Q5457:MX-3a] IS (NE 2) AND
[Q5463:MX-4] IS (NE 2) AND [Q5474:MX-5] IS (NE 2) Or Partial
Interview
N5488 MODULE END TIME
Section: MD Level: Respondent CAI Reference: Q5488
Type: Numeric Width: 5 Decimals: 0
................................................................................
775 0-13569. MODULE END TIME
Blank. INAP
NQNR SURVEYCRAFT CASE NUMBER
Section: MD Level: Respondent CAI Reference: Q9008
Type: Numeric Width: 4 Decimals: 0
User Note: NQNR is not an analysis variable. It is intended for internal
use by the HRS staff. The range is not continuous.
................................................................................
775 5057-7800. SURVEYCRAFT CASE NUMBER
NVERSION 1995 EXIT RELEASE VERSION NUMBER
Section: MD Level: Respondent CAI Reference: Q9012
Type: Numeric Width: 1 Decimals: 0
................................................................................
775 2. Release 2 - June 2003
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